Archive for September, 2005

September 27, 2005

Tuesday, September 27th, 2005

NED. NED. NED. Sam is officially “no evidence of disease”. He finished radiation at City of Hope today and then Margot met with the doctors to review all of the scans that Sam completed in the last week. Sam looks great, his immune system looks great. We are a very, very lucky family. It’s impossible […]

September 24, 2005

Saturday, September 24th, 2005

How sweet it is! We are home. We walked in the door last night around 9:30 after a very eventful day. Sammy is line free and very happy to be that way. I thought Andy would burst with joy at having us all together in the house last night. He literally jumped up and down […]

September 19, 2005

Monday, September 19th, 2005

Sam is upstairs with Julie, his favorite child life specialist playing video games. He had school today with his teacher and did very well. Radiation was a breeze. In and out. Neil and Andy are back home in San Diego and the nurses are unhooking Sammy during the day after he’s had his Vanco. Dr. […]

September 16, 2005

Friday, September 16th, 2005

Sammy has a new temporary line in his neck. Yuck. That will last about a week and then they’ll put a new hickman in. He’s feeling fine though and has been having a good time with his dad. Neil has been up there since Wednesday afternoon after the surgery and said that radiation is going […]

September 14, 2005

Wednesday, September 14th, 2005

Quick update – We are going to be in the hospital for at least fourteen days so Sam can finish his Vanco treatment. They think his line is infected and they will have to take it out and put in a temporary line until the infection clears and they can put a new one in. […]

September 10, 2005

Saturday, September 10th, 2005

Change of plans. Sammy is in the hospital this weekend with a blood infection. He spiked a fever of 103 yesterday morning about 11:00. I brought him in to the hospital and they admitted us. His blood cultured positive (this is the first time we’ve cultured anything) but we won’t know what it is until […]

September 9, 2005

Friday, September 9th, 2005

Sammy started radiation yesterday. The tomotherapy machine was pretty impressive, they programmed the CT scans in and we could see exactly where he was getting the radiation. The radiologist said that tomo turned out to be a fabulous solution for Sammy and he said they were very proud of themselves for the work they did […]

September 7, 2005

Wednesday, September 7th, 2005

We are home today. We went up the City of Hope for a blood check and Dr. visit yesterday and were supposed to start radiation today but the radiologist called last night at 7pm to say that they are postponing it until tomorrow. Sammy does qualify for the tomo and they have mapped his body […]

September 1, 2005 (Day + 27)

Thursday, September 1st, 2005

Oops – didn’t mean to go a whole week without an update. We are home in San Diego for a week. Sammy’s counts were so good that Dr. Bolotin let us go home until the 6th. It goes without saying that we are extremely happy to be here. Sammy’s been able to see Mimi, Joe […]