Archive for October, 2006

October 31, 2006

Tuesday, October 31st, 2006

Happy Halloween! Well Team, the counts are still ugly. Yesterday ANC was 154 today it is 160 -still nowhere near 500. We are going to try and get him out anyway. Dr. Willert seemed inclined to let us go yesterday but Neil just called and the verdict this morning from Dr. Madigan was “No.” Neil […]

October 30, 2006

Monday, October 30th, 2006

We are still in the hospital. Sammy’s ANC was 60 on Saturday went up to 70 on Sunday and then was at 14 on Sunday afternoon. I guess it tends to bounce around a lot when we are that low. We were hoping it would go up yesterday afternoon even a little (which is why […]

October 25, 2006

Wednesday, October 25th, 2006

Sam with no white count is like a check written by my mom – always bounces back. After a fun and funny field trip to the pumpkin patch with Sam’s first grade class he came home completely wiped out and started a low grade fever on Tuesday night. It ranged from 99 to 100 all […]

October 20, 2006

Friday, October 20th, 2006

Happy Friday! And a happy day it is. I know I promised to start with a Charlie update but first I have to share two very beautiful numbers: VMA: 9.9 HVA: 14 Yahoo! For those of you who have no idea what those numbers mean. They are urine makers and the normal VMA number is […]

October 17, 2006

Tuesday, October 17th, 2006

Sam’s counts were good yesterday. Platelets were 96 so we started chemo. Our VMA was 15 (down from last week, hurray!) and HVA is 19 (about the same) but VMA is good news. Neil and I were of course hoping that it would be back to totally normal already but that was unrealistic. Dr. Scholler […]

October 11, 2006

Wednesday, October 11th, 2006

We were sprung from the hospital yesterday afternoon after a very long four and a half days. Sammy’s white count was 368 -still low but on the way up and it usually goes up pretty fast once it starts on the upward trend so Dr. Willert let us out. I was feeling sorry for myself […]

October 6, 2006

Friday, October 6th, 2006

Ugh. Sam spiked a fever last night and we bounced back into the hospital. We went to the emergency room for a blood count to see if his counts were still high so he wouldn’t have to be admitted. Unfortunatley, his ANC was .5 and I’m guessing since we were still high on Monday that […]

October 3, 2006

Tuesday, October 3rd, 2006

Sam didn’t need blood yesterday. All counts are still good: ANC 1420 Red 9.3 Platelets 240 We did a urinalysis and will get back VMA and HVA in a couple of days. I don’t know if it’s too much too hope for that the Nifurtimox might already have some effect on that but I’m hoping they are down. […]

October 2, 2006

Monday, October 2nd, 2006

Sammy’s home early from school today because his tummy hurts him and he’s pretty wiped out. This is the first day since we finished up chemo that he’s looked a little listless. He was fine when I dropped him off at school but was looking very tired when I picked him up. We went over […]