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December 15, 2006
By Margot | December 15, 2006
And right on schedule, we bounced back into the hospital. Wednesday night in the middle of the night Sammy spiked a fever. His fever this time around is higher than normal 102-103. He’s been generally miserable for the last couple of days with itching in the nether regions and they have him on Mirapenum (sp?) and Vanco. He slept a lot of yesterday, we were down in Med/Surge area because there weren’t any beds in hem/onc and the room was really dark, I couldn’t get the blinds open. It was a low moment when I was sitting there in that dim room watching our rail thin, bald, fevery boy sleep and ruminating on the fact that he’s missing his Christmas program and making gingerbread houses at school and that’s he’s been in or at the hospital for some reason or another every single day for the past two weeks. He half woke up in a Benadryll stupor, I couldn’t figure out what the problem was and then he peed all over me and himself and the bed and started to cry. Right at that moment Christmas Carolers came by and loudly sang Rudolph the Red Nose Reindeer in the window of the hospital room. The absurdity of it made me laugh through my tears. Not a lot of smiles out of our boy yesterday but he perked up some last night when we brought everyone in and he and Andy built Bionicles. Neil got him a new Bionicle video game and it made his day today. I got back one of his school art papers that he’d worked on with his hearing teacher and it was from Thanksgiving. It said “I am Thankful For” and Sammy filled in “video games.” It made me laugh. We’re on the hem/onc floor now with all of “our nurses.”
Counts today are:
Red blood: 2.1 needs blood (thank you blood donors)
Platelets: 20 will need platelets by tomorrow (thank you platelet donors)
ANC: 0 needs white blood cells (thank you whoever invented GCSF)
He slept most of yesterday and slept in today. Neil is in with him and Grandpa and I will go in this afternoon. Andy is now openly telling people he does not like the baby and said the other night after I gave him a time out for smushing Charlie’s face in that I love Charlie more than him and it’s not fair. It just about broke my heart. So, Neil and I have been trying to give him lot of extra reassurance and love. I guess, as I was tellling Lisa Bonebrake and Colleen, the two lucky women who got to hear my woes yesterday whether they wanted to or not, it’s healthy that he’s verbalizing how he’s feeling and I know it’s normal with a new sibling. The good thing about Andrew is that he’ll usually tell you what’s on his mind. He’s pretty much anti-baby in general. There was a baby at the hospital and he told her mother, “I don’t like your baby, it’s not even cute.” Luckily she had some older children herself. I don’t think I’m going to get to our Christmas cards this year so I’m going to post the pictures I was unsuccessfully trying to make a collage in Photoshop of here below. I’m sure I’ll be merrier in a couple of days. Neil just called and says he and Sammy are listerning to The Cars and having a really good day. We’re going to do three days of chemo right after Christmas and then scan and hopefully not have to do anymore chemo for a while and can go for some oral options.
Margot
Topics: Progress Reports | Comments Off on December 15, 2006
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