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February 16, 2007

By Margot | February 16, 2007

Everyone is feeling better this week. Sam was well enought to start chemo on Monday. I forgot we had the day off from school so we went in early, got the doctor check and got started with IV Topetecan early that day. It’s nice because it’s only a hour to an hour and a half after school vs. a long eight hour day. Sammy takes a 50 mg Cytoxen pill every night and we will continue that for 21 days but today is the last day of IV Topetecan. This combo is supposed to be less toxic but it’s still taking a toll on Sam. His stomach is upset we are struggling to get him to eat. He ‘s home from school today as he was pretty wiped out but made it to most of this week. It was tough on him because Little Joe was on vacation and he missed him. Also, I don’t think he was feeling that great. We’re going in this afternoon to get pamidronate (sp)?(a biophosphinate similar to zometa) that will theorectically stregnthen Sam’s bones so that no new tumors will grow. We’ll also get our last IV Topetecan. So it’ll be all afternoon. 
Sam has a field trip on Tuesday to go to the science museuem and see the grossology exibit. He’s excited about that. We’re thinking of taking the kids to Palm Springs this weekend for a change of scenery and some warm weather and swimming but spur of the moment may not work for Presiden’t Day weekend – everything may be booked. Dr. Roberts gave me a prescription for another anti-nausea med that will make Sam sleepy so we figure we can knock him out for the car ride so he doesn’t get car sick. I have some pictures to upload from Andrew’s birthday party and some of Sam and Andrew at the beach that Neil took when I was in Austin. Sam is so painfully thin in the beach pictures that it hurts me to look at them. We are discussing Megase (which is an appetite stimulant (hormone) with the doctors. They’ve thrown up the option of the NG tube in his nose which we will not do to him. I am desperately trying to get him to eat. If you see him, offer him food.
 
Andrew is at a playdate today with Matthew Dykstra and I’m going to pick him up at tumbling class. He went to the tide pools with his preschool class yesterday and has been talking a lot about the mama crab with her babies. I’m so thankful for Andrew’s preschool. He just loves Miss Gini and Miss Jen.
 
Charlie is so cute. He’s sitting up now and just about to crawl. I just went to look at some baby pictures we had done of him so we could order some. I know I’m biased but they are so darn cute. I had a hard time deciding. The photographer when he took them said he’s never had a baby shoot go more smoothly or gotten more good shots of a baby in such a short time. As I told my cousin Taylor in New Orleans, I keep bragging about what a good baby he is and it’s probably going to come back and haunt me when he’s 16. Taylor said something really comforting like, “There’s pretty much no help for any of us when we’re sixteen.” Sammy’s been great in the hospital. I had all three boys there on Valentine’s Day afternoon after we did a treasure hunt and craft at the park that Sandra and Monica organized. Anyway, it was a bit of zoo in the hospital but our nurses helped us out as usual and Loren even took all three boys for a walk at one point. Sam was quite the cassanova and gave all the nurses a valentine. It was really cute. He and I have been doing a lot of goofing around in hospital this week.
 
Pictures soon. Please think heavy thoughts for Sam.
 
Margot

Topics: Progress Reports | Comments Off on February 16, 2007

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