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March 27, 2007
By Margot | March 27, 2007
Sorry for the lack of update. Sam is doing well. He got a blood transfusion yesterday after coming home early from school yesterday. Thank you blood donors! He perked up quite a bit after the transfusion and is in school today. He has a school play tonight and we are all going to see him. Grandpa and Stephanie are in town so they will come too. I can’t wait. I think Sam’s part of the chorus. His platelets were 54 yesterday so we’ll do another blood check on Thursday to see if he’ll need platelets. They may not be recovered enough to start chemo again next week. It’s his spring break so I know that will suit him just fine. His buddies are going places and he said he wants to go to Disneyland so we’ll see. His LDH ticked up a bit yesterday to 604. It’s still well within the normal range but Neil and I like to see it in the 500s as when we relapsed it was in the high 600s and low 700s. I know parents who’ve had kids with six or seven times the normal range are probably laughing at us but all the same, I’m waiting for Amy at the hospital to call me with last week’s VMA/HVA numbers. As of yesterday they were still pending.
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The kids are having a good time with Grandpa and Stephanie. They are house sitting for Carol and Doug who live just a couple of minutes away and have two little dogs. Sam and Andy have been having a great time taking them for walks and to the dog park. Sam and Andy got new bunkbeds on Friday and are so excited to show everyone who comes over. We bowling with the Monaco boys and Mac and Grant on Saturday. The kids all had a ball. Big news in soccer this weekend, after getting shut out in their first two games The Green Hornets (Sam and Neil’s) team scored two goals and tied the game. Oh the joy in Mudville!. All the parents kept saying “Thank goodness!” Sammy did well and seems to be getting some strength back. He jumped up and down when they scored the goals he was so happy. Little Joe was a star goalie. Andy’s team did well too though Andy really wasn’t cognizant of that fact. He pretty much just ran up and down the field with a smile on his face taking cheeto breaks every now and then and sometimes tripping over the ball if it so happened to be under his feet. The coach told me it’s really a wonderful thing to watch when “the penny drops” and the kids catch on. He says it will drop soon for Andrew. We’re waiting. Charlie is pulling himself up and wants to stand all the time. He’s going to be walking within a month – completely foiling my plan of him not walking until he’s at least two.
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We are gearing up fundraising and marketing ideas for The 24 Hour Corporate Challenge. The TeamSam jerseys are finished and Eric says they look awesome. The Emerson’s have been amazing in organizing things. Lori is working on a Coins for a Cure drive at Sam’s school that will be tied in with the bike race and the Mikulaks have the beginnings of a fantastic website for the race. I’ve been somewhat out of the loop on things and need to get my tail in gear. I was hoping maybe I can get a local business to match what the school raises.
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On a very sad note and one that is never off of our minds, Penelope London and her family need prayers and good thoughts. There are not enough words to describe how hard this brave, beautiful little girl and her parents have fought this damn disease. They have opened the door to new treatments for all NB kids. Penelope’s courage, spirit and sense of fun is the stuff of legends. Her parents are an inspiration and John is a very dear friend to Neil. Please say some prayers for her today and go hug your kids.
http://www3.caringbridge.org/ny/penelope
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Margot
Topics: Progress Reports | Comments Off on March 27, 2007
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