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April 26, 2007

By Margot | April 26, 2007

The roller coaster of scan week has not dissapointed. Since I know everyone is waiting for this part, I’ll start with the fact that the MIBG looked good to us this morning. We think we are either stable or better either of which we’ll take. The official report is not back yet though so we may be totally wrong. Earlier this week the MRI showed that in comparison to the last MRI we had way back in August, the two lesions had grown and there were several new spots. This threw Neil and I into a panic until we talked Dr. Sholler and she told us that you can have abnormal MRIs for up to two years after there is bone damage. So we did the last MRI before we went on Fenretinide and the lesions showing up now could be from when we progressed back then. A clear or almost clear MIBG is a good sign. On the other hand the MRI is also a leading indicator. We saw our first relapse spot on the MRI months before it showed up on the MIBG. So, where does that leave us? Well we’re probably going to do a bone marrow biopsy to see where we are with that. If we do that it will allow to send cells to a couple of different labs. We are cautiously happy since blood work is normal. I’ll write a more in-depth report after we get the official MIBG report.

Topics: Progress Reports | Comments Off on April 26, 2007

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