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May 15, 2007

By Margot | May 15, 2007

Making Hay While the Sun Shines

Sammy has been feeling great and this past week and a half off chemo, he has been running around doing normal kid stuff. I can’t remember when I’ve seen him with this much energy. This past weekend we decided to get out of Dodge and we pricelined a hotel in Palm Springs and got one with a 40 foot water slide. We took off early Friday. The kids had a blast and went down at least a thousand times. Even Charlie went down a couple of times with Andrew and I while Neil was packing up our room in the morning. Sammy was tall enough to go on his own but Andrew wasn’t, so Andrew, Charlie and I shot down together a few times. Much to my surprise, Charlie loved it. I think I’ve written here before that he is a thrill seeker. We spent the hottest part of the day on Saturday in the awesome Palm Springs Children’s Museum and then went back for more swimming late in the afternoon. It was a much needed break for all of us and Sam’s sweet little, “Can we do this again some time?” from the back seat on the way home made us realize we should be doing much more of it. The kids did great on way out there and we played a lot of “I’m Thinking of an Animal Vegetable or Mineral.” We got back in time for the Courageous Kid’s Mother’s Day at SeaWorld hosted by the American Cancer Society. The boys went straight for the rollercoaster as Andy is finally tall enough to ride it. Don’t know if you can see the terror in his face in the picture below, but it was a little much for him- though both boys did it twice, once with me and once with Neil. Sam brought this picture to sharing yesterday at school. He loved it and wants to go back every day. As you can see from the picture, he never looks on the way down. Sunday night we were going to go out to dinner but when we got to the restaurant we realized both Andy and Charlie were asleep. Neil said he’d stay in the car with them while Sammy and I went in and had a Mother’s Day date together. It was the best Fish and Chips and Cheese Pizza ever as Sam sat on my lap and we ordered the gooiest dessert on the menu. Happy Belated Mother’s Day to my mom, Joan and Stephanie. Owie, we missed you on this Mother’s Day.

Two funny quotes from Andy this weekend: As he served me my pizza that he made in the children’s museum he said, “Here you go mom, now use your best table manners.” Then when I folded up his map at SeaWorld and then gave it back to him when he asked for it he said, “Mom, you’ve simply ruined my map!”

Neil and Andy Mikulak are making great strides with The Magic Water Project. Children’s Hospital, San Diego has agreed to open a Nifurtimox trial here in San Diego and wheels are turning for other groundbreaking projects. Thanks Andy, for all your hard work with Neil. The Coins for the Cure drive is going very well at Sam’s school. As I wrote to Sam’s principal yesterday, I’m just floored by the generosity of the kids and their families. Every day at drop off time, it seems one of the kids in his class in bringing in coins from their aunt or their grandma. Sam takes it very seriously and is collecting all of our change. Maureen came over for dinner a few days ago and he was scrounging coins from her. It was funny. Hope all the mothers out there had a Happy’s Mother’s Day. I sure did.
Margot

Topics: Progress Reports | Comments Off on May 15, 2007

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