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June 21, 2007

By Margot | June 21, 2007

Happy Official first day of summer! The boys are jumping in with both feet. They just got back from Anthony’s birthday party complete with jumpy and water balloons. They have Luke’s sports party tomorrow and then on Saturday we leave for New Mexico. Sam’s last day of school was on Tuesday and they had a big picnic in the park. Sam played soccer almost the whole time. He was very happy to sleep in these last couple of days. Both boys are very excited about their vacation and going camping and fishing with Grandpa.
Yesterday we had a blood draw and the numbers are all good. LDH is 579, down from 589 the previous week. C-reactive protein is the lowest it’s been since we started measuring it (see a previous psot for an explanation on that). We’ll get the IL6 and IL10 and VMA/HVA in a few days. Sam also had the audioligist yesterday to make sure his hearing hasn’t deteriorated. It hasn’t. It was stable and even a bit better. It breaks my heart a little to go to these tests with him and listen to the beeps that he just doesn’t hear. Even with his hearing aids, I can tell in the high frequencies he’s tyring to decide if he hears something or not. With his hearing aids, he can repeat back 65% of words at a normal conversation level. She says things like “cupcake” and “popcorn” and he has to repeat them back to her. He tries so darn hard. Even the words he can’t get, he tries so hard to figure out what they might be. I realize he figures out a lot from context and he really needs his FM system in school. He’s a smart cookie though and not a quitter.
 
Andrew is doing theatre camp and really liking it, though he got to skip it today to got to the birthday party. Tomorrow they do a performance for the parents. Can’t wait. Andy said they only have ballerina dress up stuff and since the other boy in the class dressed up, he did it too. He said they twirled around and bonked into each other. Typical. Now don’t use this as backmail when Andy is older. I took the boys and Samantha to go see Fantastic Four last night while Neil entertained Charlie. If it wins any “best screeenplay” or “best actor” awards at the Oscars, I’ll eat my hat, but the kids loved it. Sam and Samantha are so cute. They shared a box of junior mints together and I could almost fast forward to Sam’s first date. Sam said,”Samantha, do you like junior mints?” “Yes? Would you like to share a box with me?” “OK. Mom, we’d like a box of junior mints.” It killed me. Andy will be happy to tell you all about the Silver Surfer.
 
I have been frazzled lately running from one thing to the next -trying to make the doctor’s appointments, camp, stay on top of work, etc. I had a banner day on my birthday. I locked Charlie in the car and the Fire Department came and got him out for me. It was a hot day and I didn’t think I should wait for AAA so for the second time in the space of a month, the Hutchison family tested the response time of 911. They came in about 3 minutes and were very very nice. Charlie was completely unfazed, he played peekaboo with me, laughing until the firemen got there and just smiled at them all as they got the door open. He was only slightly sweaty when I lifted him out of his car seat. Nice going, I know. My mom called me today to remind me not to back over any of my children in the driveway. Thanks Mom. Charlie is such a joyful guy. The pic above really captures him. He’s very earnest too, he’s started this half scream-half grunt when he’s pulling on something he wants and can’t quite lodge it free.
We’re off to New Mexico on Saturday for a week so check back next week and I’ll have vacation stories and pics. I know I promised I’d post last Friday and didn’t quite get to it. Oops. Happy summer everyone.
Margot

Topics: Progress Reports | Comments Off on June 21, 2007

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