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September 10, 2007

By Margot | September 10, 2007

School Days
Sam had a great first week in school. He has Mrs. Gage again (hurray) because she moved to 2nd grade. He loves his new classmates. He took a picture that Tony Hawk signed for him in for sharing today. He was very excited to show it to everyone (thanks again Mikulaks for making that happen- still need to get the thank-you note off to Tony for all of stuff he sent). We are officially back in the routine of things. Sam’s stomach is much better, his bloodwork and urine looked good last week. His hearing aids have been giving some feedbackand I thought it was just becasue the molds are getting too small again but I noticed today that the tubing on one side is brokern and barely hanging on. I did a very high tech fix this morning with scotch tape. Luckily we see our audiologist on Thursday. Since we only have the hospital one day after school, we’ve been walking home every day which Sam loves to do. For the Texas trial we have another blood draw on Wednesday and then another in two weeks. Dr. Myers said that ten days after the infusion is when the cells have been most active/effective.
 
Andy doesn’t start school until next Monday. Neil and I have been joking that his preschool is like sending him off to college. There is a lot of paperwork to fill out, a back to school picnic, a back to school parents night,and a parent/kid open house. Andy is very excited to go next week and had a good time at the picnic on Friday. He has the same awesome teachers as last year too- Miss Gini and Miss Jen. He has been having a rough time in the afternoons because he’s getting up so early to drop off Sam. There has been a lot of crying and”It’s not fair!” coming from him lately but he manages to bounce back once he gets some sleep. He’s off swimming with Grant at the Catamaran today and was very excited to go. They’ll meet Beau there so the three muskateers will be together again.
 
Charlie is spitting out a lot more words lately. He’s learned how to wave “Bye Bye” but it’s a funny sort of wave. He doesn’t spend a lot of time on it. He just flaps his arm up and down very quickly and then moves on to other things.
 
First soccer games were this weekend. The Aliens (Sam and Dad’s team) had a rough time of it 0-4. Pretty Ugly. The Ermersons are going to help us coach this week so hopefully we will have a more successful second game. Sammy played goally in the second half. He
got scored on a couple times but made some amazing diving catches. Andy scored twice in his game and was a dribbling phenom. Dare I say the penny has dropped? We met Cathy and the kids at Legoland after soccer and the kids had a great time there. We went out to dinner afterwards which was mostly a disaster but what can you expect with six kids out to dinner?
 
Things in general are good. Magic Water is gaining some momentum and we are planning some fundraisers. Patrick and Dina Lacey (dad and mom of the amazing and adorable Will http://www.willlacey.com and funny and insightful NB bloggers) have been a huge help. We are so glad they are part of the team.
I’ll update more soon.
Margot
 

Topics: Progress Reports | Comments Off on September 10, 2007

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