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October 12, 2007 – Picture Day
By Margot | October 12, 2007
It is picture day at school today. Mrs Gage moved Sam’s class picture to 11:10 so he could come back from the scan in time to take it. Thanks Mrs. Gage. Should be much easier than the picture he just took. We’re not sure of MIBG results and are going to have to wait for the read on Monday. Makes for a long weekend. Neil and I saw the same spot on his left femur in the full body scan but when we looked at the static scan (which has better resolution and is what the radioligists put more importance on) it looked clear. Loreen, our wonderful tech said she coudln’t see anything which will provide some comfort over the weekend. His ankles were definitely clear so the ankle pain, as we thought, is due to activity. I spoke with the doctor yesterday about it and if it’s not better in a couple of weeks, she’s going to refer us to an ortho. Sam said it’s getting better though. After trying several different kinds of shoes I put him in some that are a size too big and that seems to be helping. It may be less pressure on the achilles tendon.
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His LDH yesterday was 714 so it’s been bouncing around quite a bit. We would have liked to see it lower before the scan – that way we could have told ourselves how great the LDH looked over the weekend. It’s still normal but lower would be better. We won’t get yesterday’s VMA/HVA until Monday so that’s no help either. Yesterday a very nice black cat not only crossed my path but entwined itself through my legs as I put Charlie and Andrew into the car after dropping off Sam at school. I bent down and let Charlie pet it but my instinct was to kick it as far away from me as possible and scream “Get Away From Me It’s Scan Week!” Ha Ha, Can you imagine the gossip at pick up time? I could have been the talk of the town. I’m a woman on the edge, I tell you. Scan week is not good for mental stability.
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Sam was a champ as ususal. He watched Surf’s Up during the scan and didn’t move a muscle. He hasn’t wanted much breakfast lately so we tried switching the Nifurtimox to the morning since night is when the stomach repairs itself, we had to pull over three times on the way from the hosptial because he thought he was going to throw up. We’ve got a prescription for Prevacid now so hopefully that will help. We’ve got a busy weekend so will hopefully be distracted. My wonderful awesome author, Doug Sahlin, is going to help with the website this weekend so by Monday the font will
be bigger and easier to read.
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In any case, if the spot is there, which it may not be, it is the same spot and we may be able to dissapear it again with two day IV topo. I’ll post more on Monday. If you own a black cat, sorry about my mean thoughts.
Margot
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