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October 17, 2007

By Margot | October 17, 2007

“Yeah, I was in the show.  I was in the show for 21 days once – the 21 greatest days of my life.  You know, you never handle your luggage in the show, somebody else carries your bags.  It was great. You hit white balls for batting practice, the ballparks are like cathedrals, the hotels all have room service, and the women all have long legs and brains.” -Crash Davis in Bull Durham
We were NED for exactly one month and nine days.  I drove to the hospital to physically pick up the scan this morning as neither Neil nor I had received a phone call.  Neil drove to the hospital to meet me when I read him the results “Increased uptake in the left distal femur.”  Neil has the actual report now but it says that the spot looks the exact same as it did in the April scan (it was vague then).  So, it was there, then gone and now it’s there again.  The radioligist recommends that we do an MRI.  Neil and I have an appointment with Dr. Roberts to tomorrow morning to talk about a plan.  We’d like to review the scans, compare, April/August/ September scans and ask about the fact that the static scan looked clean to us which seems counter-intuitive.  We are trying not panic but of course we are panicking some.  We’ve been off chemo for the Texas trial so we’ll add that back in -whether it’s IV or oral we’ll decide with Dr. Roberts.  Dr. Willert is at COG -part of the delay in getting our results.  Our HVA was 7.5 (down) and VMA was 3.2 up by .4 (not much).
I should have more information tomorrow after we meet with Dr. Roberts.
Quick Update on the kids: Sam had a great day at school.  When we got in the car after I picked him up the Smash Mouth song “All Star” from Shrek was playing on the radio.  It’s Sam’s favorite song and I always think of it as his song.  We danced all the way home to it.  Sam is football obsessed these days and brings a football when we go places.  Sometimes I’ll be standing in the kitchen or upstairs and Sam will say, “Hey Mom!” and then a football will come whizzing at me which I have to either catch if I’m fast enough or duck or bat away. He scored a goal in soccer last Saturday and though I was watching Andy’s game which was at the same time, everyone said it was an awesome goal.  They lost 3-2 but they did manage to win their first game the Saturday before.   Andy and Charlie are doing fine.  Charlie says “Uh Oh” all the time now and is working on his animal sounds.  He is in to trucks, balls, trains, and motorcycles – he’s quite the renaissance man. Andy is very popular with the preschool crowd.  He’s having lots of play dates and my friend Kelly called him the mayor of the rec center.  He scored a goal on Saturday too and had an awesome dribbling move that left the other team in the dust.
We are back to carrying our own bags.  I’ll let you know what that entails tomorrow.
Margot

Topics: Progress Reports | Comments Off on October 17, 2007

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