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October 25, 2007

By Margot | October 25, 2007

The boys are home all week from school because of the fires.  We are fine, far enough out of the range of the fire that we didn’t have to evacuate.  Neil’s office is right in Rancho Bernardo, the spot most affected by the fires and today is the first day he’s been back to work.  He said the air quality is very bad and he’s only going to work until noon.  Several of the people he works with have lost their houses and Sam’s elementary principal lost her house as well. Our thoughts are with them.  The air around our house has been smokey and the kids have been inside all week. Good Times.Today and yesterday with the winds blowing in from the ocean, the air has cleared quite a bit. 
We went to MyGym on Tuesday afternoon as it was open and free and the boys got to run around. Yesterday Andy had a play date with Luke and I took Sam and Charlie to the hospital.  It was actually great because it’s totally sealed and Charlie was able to run/trot up and down the halls and get some energy out.  We did several blood tests. They took about 50mls of blood (a lot) from Sam  for tests for Dr. Belanger in addition to  his normal CBC and chemistry.  His LDH is down about 100 points from the last measure -618 which is great news.  We haven’t received the VMA/HVA yet but are optimistic.  He’s feeling fine, a little tired at night from the cytoxan (and running around all day) but otherwise in good spirits and by all outward appearances, good physical shape.  The Prevacid has really been helping with his eating and he was 48lbs yesterday.  Wohoo! We have an MRI scheduled for this coming Monday.  Ick.  We are still working on an appointment with the radioligist who read the MIBG scan and Dr. Willert.  I’ll refrain from further comment on that topic.
Andy is at playdate with Beau today and Sam is currently playing his latest video game obsession -All Madden Football- though I have to put a curb on that and practice spelling later.  He plays as the Chargers and usually against the Patriots (sorry Laceys).  Unlike in real-life Sam’s Chargers crush the Patriots. He’s off to go ice-skating with Mimi at the mall in a few minutes. We’ll have dinner with the Monacos tonight and last night went to the school fundraiser at Rubios so Sam’s getting in his friend time too.  Distraction distraction.  As long as we can keep busy I can “la la la everything is fine” through the days. Middle of the night is different but I’m getting in lots of reading.
We are of course very excited for Halloween around here and have decorated the house.  Sam is going to be the Incredible Hulk, Andy will be Dracula (you have to ask him to say “Guuud Eveening.  I vant to bite your neck.” It’s a crack up.  Charlie is either going to be a little devil or Frankenstein.  The Frankenstein costume is a little tight in the shoulders for our little linebacker but so cute.  That’s all for now from Smokey San Diego.
Margot

Topics: Progress Reports | Comments Off on October 25, 2007

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