Archive for March, 2008


Friday, March 28th, 2008

I’m very sorry to have left everyone hanging.  I was waiting to hear something official from the head of radioligy.  Dr. Willert had said she’d call him.  She’s out of town this week so we may not hear his read until next week.  Dr. Sholler read the scans and said she only saw the spot above […]

Cast Free!

Tuesday, March 25th, 2008

Sammy got his casts off yesterday and he was the happiest boy alive. All day he was waiting for his 3pm appointment and had told his teacher and his whole class that he might get his casts off.  I was so hoping he would because I knew he would be crushed if they had to stay […]


Friday, March 21st, 2008

So we’re not really sure how the scan looked.  The left leg, where we’ve had uptake in the past, was perfectly clear.  The right leg looked like there was some uptake around the knee but it was faint and we’re not sure how much of it to attribute to growth plate issues at this point.  […]

Arizona, St. Pat’s, Scan Friday

Wednesday, March 19th, 2008

  The boys have had a good spring break so far. We had a great time in Arizona.  The boys had a ball at the game and even more fun at the hotel.  The hotel could have been in the middle of nowhere and they would have loved it. They got up and made their own […]

Results so far

Friday, March 14th, 2008

Dr. Willert called this morning and gave us results so far:  Sam’s bone marrow is positive.  Barely positive, but barely positive with neuroblastoma is like being barely pregnant.  His HVA is 11.6 (down) and VMA is 6.3 (up).  The MRI showed no abnormalities – a good thing but she doesn’t know how far it went […]

LDH 799

Wednesday, March 12th, 2008

Well today’s LDH is 799.  I don’t like going into an MIBG week with 19 HVA and 799 LDH.  For Sam’s age group the high end of normal LDH is 750.  However, I think the last time we had an MIBG, I scared everyone to death with high blood numbers beforehand and it was fine and […]

Kindness That Keeps us Afloat

Monday, March 10th, 2008

  Sam and Max with Tony Hawk    Sam and Joe Little Joe Monaco (Sam’s best friend) to his mother last week:  “Mom, I don’t want to give up my dream of being an airline pilot but I think I’m going to be a scientist and cure cancer.”  Colleen told him that he can buy […]


Monday, March 3rd, 2008

We have an MRI scheduled on March 11th and an MIBG on March 20th.  HVA today was 19 (Cripes!) and VMA was 5.  The consensus on Sam’s growth plates is that his copper levels are too low, correlated by the fact that, well, his copper levels are too low.  His cirruloplasm today was ten which is […]