teamsam.com Blog

« | Home | »

LDH 799

By Margot | March 12, 2008

Well today’s LDH is 799.  I don’t like going into an MIBG week with 19 HVA and 799 LDH.  For Sam’s age group the high end of normal LDH is 750.  However, I think the last time we had an MIBG, I scared everyone to death with high blood numbers beforehand and it was fine and the numbers went back down in the weeks following the scans. We’ll probably get today’s VMA/HVA next Monday. I am thankful that we have an MIBG next week because then we won’t have the endless speculation of “Could it be this?” “Could it be that?”  We had an MRI yesterday and a bone marrow biopsy today.  Both went smoothly except that the MRI of the whole leg wasn’t ordered, just the ankles and the knees which does not help us much with the neuroblastoma knowledge but will tell us more detail about his growth plates.   Sam is a little sore from the bone marrow biopsy and very cranky and weepy (a side effect of propofol- it usually happens to Sam if he wakes up too early on it).  The bone marrow is being flown the Dr. Sholler in Vermont so she can grow Sam’s cells and then send them to Dr. Brown at MD Andersen if there is anything to grow.  We meet with Dr. Chambers on the 17th to discuss the MRI and then the MIBG injection is on Thursday and scan is on Friday.  I’ll post news as I have it.

 Margot

Topics: Progress Reports | 2 Comments »

2 Responses to “LDH 799”

  1. Abra McKean Says:
    March 12th, 2008 at 9:18 pm

    Hello Margot and Neil,

    I can’t believe I didn’t realize that you could post comments on this blog. “Blonde” moment!! Please know that I will be praying for Sam and all of you in the upcoming days. Stress of scan week is like now other. When people complain about normal everyday stress I sometimes want to tell them to stuff a sock in it. I think of you all often and pray for Sam daily.

    With Hope
    Abra McKean
    Mommy to Superhero Natey McKean
    10/24/01-6/16/07

  2. Rhonda Dudley Says:
    March 13th, 2008 at 11:58 pm

    I will be thinking about you guys as you do that mibg tomorrow… Scan week is the pits!!!! You will feel so much better when tomorrow is over… like this big cloud has been lifted that has been sitting right over your head!!!!

    Please know that we are praying for you all and that these scans continue to show that Sam is beating those odds once again!!

    rhonda

    http://www.caringbridge.org/tn/sydneymarie