Archive for April, 2008


Wednesday, April 23rd, 2008

Last Friday after the MagicWater meeting Melissa Mikulak set up a surfing lesson for herself, me, Dr. Sholler and Melissa Kipp, our awesome volunteer project manager from Boston.  Not only did we have a perfectly beautiful Southern California day with dolphins swimming and jumping right off the shore, but we also had Michael Willis, one of […]

A Few Pics

Tuesday, April 15th, 2008

  Here are some pics from our trip.  Will do a full update soon.  The Magic Water meeting is on Thursday.  We meet with Dr. Willert on Wednesday to discuss a plan, rising numbers and the final read from Dr. Harvey on the March MIBG. Yesterday was the Legoland field trip and the boys had a great […]

Off for Some Fun in the Sun/Numbers

Thursday, April 10th, 2008

Sam is looking and seems to be feeling as well as he has in a long time.  His ankles are getting much better, he has no pain at all and people keep telling us how great he looks.  The nurses when we walked in for the blood check yesterday said he looked fantastic.  He’s got […]


Tuesday, April 8th, 2008

Thought you all might like to see the press release on what MagicWater has funded so far this year:   Pretty amazing.  Neil, Andy, Pat, Meryl and Dr. Sholler have moved mountains in a short period of time.   Thanks to all who have helped and are helping make it happen.  We have many miles to go…. Margot  […]


Wednesday, April 2nd, 2008

I have been in a Slump -the particular kind that Dr. Seuss refers to in his book OH THE PLACES YOU WILL GO:  “And when your in a Slump you’re not in for much fun, Un-slumping yourself is not easily done”…  “You can get so confused that you’ll start in to race down long wiggled roads at a […]