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Kiss Your Kids Today
By Margot | May 1, 2008
Max and his parents could use some support and kind words today. Please stop by their website: http://www.mikulak.blogspot.com and offer some support if you haven’t already.
This is why we need to keep raising money. MagicWater has no agenda but to save our kids and get money into the hands of people who we think have the best therapies available.
Sam’s LDH yesterday was 621 (down and normal) VMA 12 (down a bit) HVA 19 (up a bit). I’m am working very hard on focusing on today and not driving myself crazy over numbers. The LDH is great the HVA is too high. We have a scan in two weeks and Sam is feeling very well today.
We went to the beach last weekend and the zoo.  Poor Charlie hasn’t seen as much of the zoo as the other boys had. He loved it. The monkeys were his favorite of course and he loved as Neil said “The Native American Diesel Tour Bus.” I thought of you, Colleen Kuhn, every time he said, “Ooooh Buuus!” We have been getting outside as much as possible now that it’s staying lighter later. The boys and I have been making up new basketball games after they get bored of Horse and Around the World. Last night Andy made up a game called “hoop” where you chase the person with the ball to tag him, then you have to count to five and if he says hoop before you get to five he can make a basket and win. If you follow the rules carefully it’s pretty easy to win because you just keep saying “hoop” all the time. As I put Sam and Andy to bed last night I kept hearing them giggling in their room after the lights were out — it’s a sound I could listen to forever.
Austin Melgar died on April 25th. He is remembered here:http://www.lifestorynet.com/memories/35620/ Please say some prayers and think good thoughts for his family during this difficult time. He was an amazing little boy.
Margot
Topics: Progress Reports | 2 Comments »
May 7th, 2008 at 1:13 pm
Enjoy the day, forget the numbers. Very happy Max is home!! and payers for Emily and family. They can use all kinds words
May 7th, 2008 at 1:14 pm
Enjoy the day, forget the numbers. Very happy Max is home!! and prayers for Emily and family. They can use all kinds words