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Dr. Sholler/Sam/Max/Deb
By Margot | May 23, 2008
Thought you all might like to see this news report on Dr. Sholler and some of the kids she’s treating….
http://www.wcax.com/Global/category.asp?C=18830
We are on our second day off from chemo and Sam was feeling good this morning. He threw up on Wednesday night and his protective little brother looked at me accusatorily and said, “those new pills you are giving Sam are making him throw up, Mom, so you need to stop giving him those, Ok?”  We were in the car on the way to basketball last week with Joe and Jake and Sam was telling me not to hit the red lights because he needed to get out of the car quickly so he didn’t get sick and Andy said proudly to Joe and Jake, “Mine brother’s thown up like a million times. “ That’s Andy’s normal. Sam hardly talks about it and just wanted to get to basketball.  Pat Lacey’s blog yesterday “Grooming a Pill Popper” talking about the Cancer Kid Olympics made me think of that moment last week:  http://www.willlacey.com  Yesterday, Sam’s stomach felt rotten (heard this from Mrs. Gage, not Sam)  but he rallied in the afternoon and seemed to feel much better when I picked him up from school.  We start again tomorrow morning for five days and then have a week off. The boys have basketball tonight and Sam’s friend Nicholas is coming over for a play date. Andy has Matthew’s birthday party this afternoon which he’s been looking forward to for weeks. Charlie is going to come to everything because he is not to be left out. As soon as anyone opens the door (even if it’s just to take out the trash) he shouts “I coming!”
Our friend Deb Schwedhelm is photographing Max’s journey as he fights NB. She and the Mikulaks have put up a new site with a blog and Deb’s amazing photographs. Before I give you the link, I must say a few words about Deb. She is the most kind generous person you will ever meet. Her beautiful daughter Kiele has a cochlear implant and I met her through our hearing specialist at school. She’s also good friends with Mrs. Gage. Our hearing specialist first told me about her this way, “if you want to know how to be an advocate for Sam in the hearing department, you need to talk to Deb Schwedhelm. She is amazing and has done so much for her daughter.” Deb paved the way for Sam to have an FM system, an aide in class, and all sorts of support. Her pictures speak for themselves but she is just magic with the kids. We’ve been to two sessions with her where the whole family was cranky and Sam was frankly a mess - crying, uncooperative and determined not to have pictures taken of him. Deb somehow managed to not only get him to smile, but to capture some of our favorite pictures of him ever taken. Max, well I don’t have to say much about Max to most of you who follow our site. He is a great, kind, happy kid whose enthusiasm is contagious.  You should really check out the new site: http://mashedpotatoesforbreakfast.blogspot.com/
There. Have I given you enough homework for one day?
Margot
Topics: Progress Reports | 2 Comments »
May 23rd, 2008 at 6:43 pm
thanks margot for all the kind words! Hopefully I can help raise awareness of neuroblastoma!!! You all are such gifts in my life. Thank you for all YOU do.
And email me about a date for pics!
Many hugs,
Deb
May 26th, 2008 at 5:53 pm
Margot,
So happy to hear things are ok. I love reading updates about playdates and birthday parties. Thinking of you all.
With Hope
Abra