Archive for September, 2008

Update at Long Last

Monday, September 29th, 2008

Neil, Sam and Andy on the big screen at the Padre game Charlie showing his baseball We are all fine.  Sorry for the long delay on updates. Sam’s VMA/HVA numbers came back today VMA: 8.8 (pretty good) and HVA 11.9 (little high).  VMA number made us very happy today.  The boys have been busy with school, soccer, […]

Football Season

Tuesday, September 16th, 2008

Sam Running for the TD touchdown celebration Sam laughing at Dad Charlie for the long bomb   It was a beautiful night last night and we took the football up to the park.  The boys had a great time as you can see.  We had the park to ourselves and it was just one of those unexpected […]

Breaking news

Friday, September 12th, 2008

Quick update to today’s post to provide some mental relief VMA/HVA back down to 9.5 and 9.3. Margot


Thursday, September 11th, 2008

We did an new scan for us on Tuesday and Wednesday of this week. It’s called an octreoscan and it’s similar to an MIBG scan but it’s over two days and the injection is different. The Tuesday scan was 4-hours post-injection and the Wednesday scan was 24-hours post-injection. It is a much clearer scan than […]

First Week of School

Friday, September 5th, 2008

Before you read this post, I have a couple of places to send you today:  First please click on the following link to see the wonderful Lacey Family and Magic Water on the Boston news: Second, Erin Buenger is in the hospital facing five days of continuous chemo and it would be great if […]


Monday, September 1st, 2008

Max’s wonderful laugh was silenced last night.  In a galaxy far, far away, there is an angel fighting alongside Luke Skywalker and Princess Leia to make the world safe for everyone.  Please keep his family in your thoughts & prayers and visit his site at Neil.