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Holding Steady
By Margot | November 11, 2008
Things are holding steady here. Our VMA/HVA numbers were almost the exact same last week as the week before.  We’d like to see them go down but happy they are not going up.  We had a great time with my dad and Stephanie in town. They were great with the boys and a huge help. Grandpa went to Sam’s school and gave an astronomy talk about the sun, moon, planets and the solar system. He was a huge hit with the kids and Sam’s teacher, Mrs. Abuhl, elbowed me during his talk and said “Can he come back next week and talk about stars?” She was bummed to learn he lives in New Mexico. Sam has been working hard on his homework after a week and half of knock down drag out homework fights during which, to put it nicely, I was not at my best. I think we’ve got a system down but we’ll see how it works out. Neil’s been working really well with him on flash cards. We just gave the kids back their video games after five days without them so we’ll see how it goes.  Andy is doing fine. He went with us to the hosptial  yesterday for Sam’s blood check to keep him company and the boys passed the football in the halls. The boys were teasing Charlie to the point of tears after we got home and I told them Santa was watching (Charlie had just watched Rudolph). Andy got very concerned and when I came down the stairs later he asked, “Mom, can you play with coal?” I know, it’s not even December and I’m resorting to Santa - really working on calm unflappable patience in leui of shrieking, Santa threatening mother.Â
Soccer season is winding down and basketball starts soon. Charlie is starting “arms” in swimming lessons and playing with his firetruck and Clifford lately. We put out fires all over the house.
Next week is a big week for us. Both boys have their parent teacher conferences (Andy’s is Tuesday and Sam’s is Wednesday).  Those will be put immediately into perspective because they are followed by Sam’s scans. Wednesday is his injection and Thursday is a bone marrow biopsy to be sent to Dr. Sholler followed by an MIBG scan.  Â
I’ll try to post this weeks numbers as soon as I get them. We’ve been getting them back earlier since we started doing checks on Monday vs. Tuesday.
More soon.
Margot
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Topics: Progress Reports | 2 Comments »
November 11th, 2008 at 9:14 pm
ahh… the ever popular santa threat. Use it while you can! Emily used to get creeped out by the concept.
January 4th, 2009 at 3:16 am
Hey, its me. Happy New Year!! I imagine a christmas in California would be sooooo cool considering its like always warm. Im rooting for Sam and your whole family. You guys are really brave. Im not sure if I could do that. You guys remain in my prayers and I really hope you read this.
Good Luck and Stay Brave,
Love you all Emily