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Out in the Sunshine
By Margot | February 19, 2009
We are having a lovely 72 degree day here in San Diego. It has rained for the past two days. As if our life were a movie, the weather has turned beautiful on our first day out of the hospital. The day we went in it was pouring rain. I think my lowest moments have been in a dim hospital room sitting next to a sleeping Sam -and in Monday’s case watching the rain pour down- wondering how our little boy can take all of this. Yesterday I had a break down in the hospital and Joanne, the parent liason talked me off the ledge. Thank you Joanne, you are wonderful.  Everyone was very ginger with me after that and the social services lady even stopped by. I was imaging everyone around the front desk, “Alert, we have a crier in room 117.”  Anyway, just coming home was good and seeing Sam feeling good today was good.
As a side note, I was thinking that our tour of hospitals is becoming quite a list (San Diego, MDAnderson, Children’s LA, City of Hope, Maui Memorial, and all of those that Neil has visted without Sam would probably triple that list -quite the tour. Maybe we’ll be like one of those families that travel around trying to visit every baseball stadium in the country but  instead of stadiums it will be Children’s Hospitals.
Anyway, we are out. It’s a beautiful day and Sam is back in school. I just went to check on him and Andy at lunch and he’s playing four square with a big smile on his face. Just what I like to see. I was worried about how he would do because last night he was helping me with dinner and he said I’m feeling kind of woozy, I’m going to lay down and then slept through the night. But he woke up well this morning aside from the sniffles and said he’s having a good day. It was “Dress like a Famous Person Day” at school and I totally forgot about it. It was funny because Sam told his class he was David Beckham. When he first lost his hair I got him a bunch of bald sports star posters and David Beckham was one of them. He said, “You know, I figured since I have no hair, I could be Beckham.” It was funny.
Neil and I had a good meeting with Dr. Willert this morning and we have a plan in place for next week that will go a little easier on Sam in terms of chemo but will still beat back disease. It may change but it’s nice to have a plan. We’re still waiting for Monday’s VMA/HVA numbers to come back.
 MargotÂ
Topics: Progress Reports | 3 Comments »
February 19th, 2009 at 10:55 pm
Sooo, sooo happy to hear that you are out!!! And Shelby says to tell Sam that David Beckham wishes he was as cool as Sam 🙂 We will add a prayer that next weeks plan does it job while letting Sam stay out on the foursquare court.
With Hope,
Abra
P.S. It’s hard to stay off that ledge Margot…you do it amazingly well!!
February 19th, 2009 at 11:32 pm
Sam~
It was so nice seeing you at school today. We missed you SOOOOOOO much! We love you Sam!
Heather
February 20th, 2009 at 12:28 am
glad to hear you are out and about and enjoying your beautiful sunshine!