Archive for June, 2009

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Line Infection

Tuesday, June 30th, 2009

Sam has a line infection.  They cultured something.   That would explain the fevers.  He is now on Vanco which he has to be premedicated for because he gets redman’s syndrome so he is sleeping at the moment.  Neil said he woke up happy and in a good mood before I got here then tried to eat something […]

Generally Miserable

Sunday, June 28th, 2009

We are on day three of high fevers with no counts.  The doctors want to do a CT scan to make sure we aren’t missing anything and add an anti-fungal.  ANC was zero today and platelets were 63 -right after yesterday’s infusion so he’s not making many platelets.    His stomach hurts and last night right […]

Back In

Saturday, June 27th, 2009

Sam’s fever spiked on Thursday night and his ANC was zero so we were admitted.   He’s not eating much of anything but otherwise feeling ok.  Mimi came and visited yesterday and Mac may come this morning if and when Sam wakes up and Joe will come this afternoon.   He’s getting a red blood cell transfusion right now and Neil […]

Out but in clinic for blood today

Thursday, June 25th, 2009

We got out of the hospital yesterday afternoon.  Joe came and horsed around with Sam all day until we got out and they had a great time playing video games, seeing the miniature horses that were there and going to the play room. Thank you Joe and Colleen.  We had a nice afternoon, dinner together […]

Back in the Hospital (Hopefully only for a night)

Wednesday, June 24th, 2009

Laser Tag Fun -Joe’s Birthday We were admitted again last night.  Sam was peeing blood all day yesterday.  He woke up with very red urine but otherwise feeling fine.   He went to science camp with Andrew and they had a great time.   Afterwards, Meredith and I had a picnic with the kids before I had […]


Monday, June 22nd, 2009

We got home yesterday morning.  Sam woke up feeling good and had been fever free for 24 hours.  We were all together for Father’s Day yesterday which was great.  Neil got home at 3am on Friday night.   We  took it easy for most of the day yesterday and then went to the park yesterday afternoon […]

still fevery

Saturday, June 20th, 2009

Sam didn’t do any Cytoxan today.  He had blood in his urine right before we were supposed to start it so we just did the topotecan infusion.  His throat started hurting this afternoon and his fever got to 103.   The night nurse checked the oxygen machine after she saw his temperature which freaked me out.   He […]

Stopped Cytoxan

Friday, June 19th, 2009

We stopped the Cytoxan infusion today.  Sam got about 1/2 the dose.  He started peeing blood and we stopped it.   Soon after we stopped his urine cleared.  I’m thinking it’s a good sign that there isn’t constant bleeding and that it’s clearing with hydration but still it’s not a great sign.  Dr. Willert thinks it might be clear […]

Day One Down -Sam’s Starting to Feel Crappy

Thursday, June 18th, 2009

We are in post-chemo hydration and Sam is just starting to feel crappy.  His stomach hurts and his fever has spiked again.  He was feeling good all day but around 3 o’clock started to get shivery and his stomach hurt.  Right after I posted yesterday he spiked another fever and had a fever most of […]

School’s Out, We’re in the Hospital, Chemo starts tomorrow

Tuesday, June 16th, 2009

Sam and I are in the hospital today.  The plan was to have a 10am blood check, an 11am doctor’s check and then come back this evening around 6pm for a direct admit, a full night of hydration and start chemo tomorrow.  Of course we all know things don’t always go according to plan.  Sam […]

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