Archive for July, 2009


Wednesday, July 29th, 2009

This week has finally felt like summer for all of us.  Sam’s leg pain seems to have dissapeared.  He went to basketball practice on Monday night, did a waterballoon fight on Sunday and did tennis yesterday.   All of this has been interspersed with a lot of swimming.    Counts seem to be holding up all right. ANC […]

Hangin’ with Sam

Wednesday, July 22nd, 2009

Sam and Andy playing Wii -taken on my cell We are on day three of Topo/Cytox.  So far not too many ill effects.  Neil is bringing Sam in around 7:30 in the morning and I’ve been coming in around 9:15 after dropping off Andy and then Neil goes to work. After the first day getting everything started and […]

CHOP/Philly/Home/The Plan

Friday, July 17th, 2009

We are home now. Got home last night around 8. We had a good meeting with Dr. Maris and Diane Baniewicz and left with a lot of hope for the new trials just started and some things around the corner that we will aim for.  We are going to do the Ultratrace MIBG treatment. We are […]

Happy Birthday Sam!

Tuesday, July 14th, 2009

It’s Sam’s birthday today. He is officially nine.  We are so proud of our Sam.  He had a great laser tag party on Saturday night with all his buddies and played in his basketball game on Saturday morning.  There is no quit in our boy.  He dribbled well and passed well and was fouled while he was […]

Less Impressive But Still Impressive

Friday, July 10th, 2009

By our untrained eyes the scan looked better.   We didn’t have the NY scan to compare it to up on the screen but it looked like we cleared some of the left leg and the left arm and possibly a few other spots.  That said, the spine still lit up, the entire right leg including the […]


Tuesday, July 7th, 2009

We are home on IV antibiotics that areadministered every eight hours.  Sam is eating here and there a little here, a lot there.  He ate four pieces of challah bread at Lisa’s today.  He is tired and unlike other times when we’ve gotten out of the hospital and I’ve had to caution him to take it easy, […]

Happy 4th! Sam is Getting Out Today

Saturday, July 4th, 2009

Qucik update.  Sam’s rash got worse Thursday but better yesterday.  They biopsied and have pretty much concluded it was a drug reaction.  Sam’s line cultured one other day so we may have had a line infection too.  He hasn’t cultured in the last several days though so I’m not sure he’s going home on IV antibiotics or […]

Spoke Too Soon

Thursday, July 2nd, 2009

Sam woke up with a painful red rash all over his body yesterday.  We thought it might be a drug reaction to Vanco but most of the doctors that looked at it – we had in infectious diseases, dermatology and the oncologist on the floor look at it- didn’t think it looked like a drug […]

Line Didn’t Culture From Yesterday

Wednesday, July 1st, 2009

So they are thinking it was probably an outside contaminant and not a line infection because the culture they did yesterday morning at 4am before starting the Vanco didn’t culture which means the blood was contaminated after they took it out of Sam.  Hurray.  Anyway, we hope so.  If this mornings culture comes back negative […]