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Slowly
By Margot | July 7, 2009
We are home on IV antibiotics that areadministered every eight hours. Sam is eating here and there a little here, a lot there. He ate four pieces of challah bread at Lisa’s today. He is tired and unlike other times when we’ve gotten out of the hospital and I’ve had to caution him to take it easy, he’s sleeping in quite a bit and wants to lay on the couch a lot. If you don’t think that scares me out of my mind, you’re dead wrong.   He did just spend ten days laying very sick in the hospital but I’m so used to him bouncing back with a vengeance when his counts come up that’s it’s disconcerting.  He does have energy in spurts though so it’s not all laying around. He and Andy just went and played at the Bonebrakes today and he had a great time. We went and saw Ice Age with Mimi last night and he sat on my lap for most of it but he loved it. I recommend it -it’s much better than the second one.  Having seen just about every animated movie known to man I feel qualified to say which ones are worth it. This one had some great action scenes and the new weasel  guy in it was funny – a crazy Australian – like most of them ;-).
Home health came on Monday morning and took Sam’s labs and VMA/HVA at home because awesome nurse Sheila set it up for us so Sam could have some days off from the hospital. Thank you Shelia, as Sam and Andy would say, You Rock! Blood looks good. ANC is 4851 -that’s GCSF. Platelets were 87 and red blood 10.2  Tomorrow is the injection for the scan and a blood check and doctor’s check with doctor Willert. Sam still has huge red target looking splotches all over his upper legs and some on his lower legs. Not sure if it’s a different reaction to the new antibiotic or the old reaction working it’s way through.
Thursday at noon is the scan. We want to see unimpressive. Elizabeth is on vacation on Thursday and Friday and Kelly and Meredith are going to entertain Andy and Charlie -  They called me today and said, “we’ve got you covered whenever and however long you need us on Thursday.” Thank you Thomases and Brunettes. Andy has basketball practice tonight and then depending on how things are going we might go down to the beach for a picnic. Andy’s basketball practice reminded Sam of his team. He’s only been to one practice and wanted to know when his next game is. It’s on Saturday and I’m not sure he’s going to make it. I told him, I think he needs to take it a little easy and will not go to the game and his response was, “What!? That means I’ll have missed two games.” Â
Neil had to go to Omaha for business for a couple of days but will be back for Sam’s scan on Thursday.  We did not see much of the scan as it was happening in NY. They only let one parent in at a time and don’t put the scan up on the screen. When I ask the tech to show it to us she basically flashed in the screen for a few minutes and then took it down. In San Diego we will be able to see it all unfold. We love our techs here.  Neil made me laugh today when he called because after we’d talked about how Sam was doing and what Andy and Charlie were up to and went over all of Sam’s meds. he said as he was signing off, “Hey did you hear Michael Jackson died?” He was being sarcastic of course.
I’ll post after the scan.
Margot
Topics: Progress Reports | 7 Comments »
July 7th, 2009 at 11:44 pm
Glad you guys are at home. Call if you need anything! 858 699-8403. Angela (Madison’s Mom)
July 8th, 2009 at 1:22 am
Praying for Sam..hoping for Impression is unimpressive…
July 8th, 2009 at 2:04 am
Praying for unimpressive. Sam is just resting up for his big birthday bash! Nine and many more!! Love to all of you!!!
July 8th, 2009 at 2:15 am
Keep the faith and your sense of humor!
Thinking of you all!
xo, Colleen and gang
July 8th, 2009 at 4:43 pm
We’re saying prayers for Thursday-come on “unimpressive”. Let me know if you guys are up for coming over to swim on Fri.
July 9th, 2009 at 1:50 pm
Good luck today!
L,
M
July 9th, 2009 at 3:03 pm
Sam, I miss seeing you play four square at recess. In September, I can’t wait to see you play it and get everybody out!
Love, Mrs. Abbuhl