Archive for August, 2009

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Much Better

Monday, August 31st, 2009

Sam has gotten incrementally better every day since we’ve gotten home.  He stopped morphine the day after we got home and stopped limping a couple of days later.  He needed a cart ride and to be carried  through the airport but now is not limping at all.  Wohoo!  His tongue and taste budswere still pretty […]

Coming Home Today

Wednesday, August 26th, 2009

Sorry for the lack of update. Sam and I will be on a plane tonight at 6pm. No fevers yesterday. Pain under control. Ate a few bites yesterday and perked up a bit. He is so happy to be going home. He has been through hell and back, and since he is back I can […]

Good News/Bad News

Monday, August 24th, 2009

So the good news is that Sam’s radiation level is at 4.3 and if we didn’t have any other issues we would be out of here today after the scan. The bad news is that Sam’s leg pain seems to be worse, he spiked a fever last night and his stomach is really screwed up. […]

Turning the Corner?

Sunday, August 23rd, 2009

I think we are turning the corner today.  Yesterday was pretty tough.  Sam was in a lot of pain in his right leg so we spent the day trying to catch the morphine up to his pain. It sucked.  A lot.  I think we finally succeeded in the late afternoon and Sam was up all night […]

Here in Philly

Friday, August 21st, 2009

It’s 6am Philly time.  I came in yesterday around 5pm and feel much better being here.  Thank you Lisa B. for waking up at 4 in the morning to take me to the airport.  I couldn’t stand the thought of me getting here and Sam already in isolation.  I was able to sleep next to him […]

The New Plan

Wednesday, August 19th, 2009

I probably shouldn’t write this now as there are tears streaming down my face and things will look brighter surely in a few days.   They are admitting Sam for pain today and we will do regular MIBG starting on Friday.  His pain is disease progresssion.  The result of his bone marrow biopsy from last week showed […]

Sam’s arm probably not broken

Tuesday, August 18th, 2009

So,  the radiology team at CHOP doesn’t think Sam’s arm is broken and the head of radiology looked at the x-ray.  So I’m not going to post too much here as I may have a new or different story shortly but the pain in Sam’s arm isn’t anywhere near where SD thought they saw a […]

Holy Crap!

Tuesday, August 18th, 2009

Well I was in the middle of a post telling you that Sam was having severe arm pain for the last two nights and that we were talking  with Dr. Maris about whether or not we needed to regular MIBG starting this Friday.  I don’t need to say we’ve had a sick feeling  and no sleep for […]

On the Way.

Wednesday, August 12th, 2009

I dropped Neil and Sam off at the airport this morning at 5:15am.  We left a little more time today for the 6:30 flight and Neil said the security line was still bad but they were fine as they didn’t have any bags to check and had their boarding passes.  Charlie came with me because he […]

“I Just Look That Wave in the Eye and Say ‘Hey Bud, Let’s party.” – Jeff Spicoli

Monday, August 10th, 2009

Sam, Andy and Joe Surfer Dudes All three standing up Charlie’s version   Sam received a surf lesson  for two from Joe for his birthday.   We added Andy and he and Joe and Andy took the lesson on Friday and they had the best time.  With 15 minutes to go in the hour and a half lesson  I […]

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