Archive for November, 2009

Nice Thanksgiving Weekend

Monday, November 30th, 2009

Since everything starts up tomorrow – school, work, hospital, infusions, blood counts, VMA/HVA from last week – I thought I ought to post that we had a great Thanksgiving weekend overall.   I stayed off of my computer for three straight days and it was very relaxing.  The night before Thanksgiving Andy had the stomach flu […]


Tuesday, November 24th, 2009

Sam had his first treatment in the hyperbaric oxygen chamber this morning.  It looks like a little submarine and he was in there with two other adult patients who were very nice.  Sam was pretty nervous to do it but watched Pirates of the Caribbean and gave me the thumbs up through the little window I was able to peek through.  The […]

Neil and Sam Home Tonight

Wednesday, November 18th, 2009

Neil and Sam are coming home tonight at 10pm.  They were scheduled to meet with Dr. Maris at 12:30 tomorrow but we have decided to do it by phone as Sam is not feeling all that well.  The scan is better in some spots and worse in others.   Sam has shoulder pain now and has […]

Neil and Sam in Philly tonight

Tuesday, November 17th, 2009

Okay, so I’m sure you did a double take at that title after yesterday’s early morning post.  That’s what I get for lagging on the news.  Sam woke up yesterday much much better and went outside to visit with his brothers without his sunglasses.  He had a bit of a low grade fever in the […]

In the Hospital with Fever, Head Pain and Eye Pain

Sunday, November 15th, 2009

Sam’s headaches got progressively worse.  Wednesday night he woke up crying in pain and holding his head.  He went back to sleep with some tylenol and then Thursday we were in the clinic trying to find the cause of the headaches.  His eyes hurt and were very sensitive to the light.  We thought it might […]


Thursday, November 12th, 2009

Sam’s stem cells have officially engrafted.  His platelets today were 86 - up ten from 76 on Monday without any help at all from a transfusion!  I keep thinking of when we collected those stem cells and how it seems like a lifetime ago.  I looked back at my post from March of 2005 with little […]

One Week to Scans in Philly

Sunday, November 8th, 2009

Sam stayed home from school for the most of last week.  He was feeling fine but there were nine kids out in his class with some version of the flu and a couple of confirmed cases of swine flu.  Also, we figured it might be good for him to take it easy for a few […]

Halloween Pics

Tuesday, November 3rd, 2009

All of the boys Hopped up on Candy Today went well.  Clear so far.  Sam went to school and didn’t run.  I had a whole contingent of people helping to remind him, teachers, his friends and aides.  I took Andy out of school early and he and Charlie had a swine flu shot party with Meredith and her kids […]

Out Yesterday Had Halloween

Sunday, November 1st, 2009

Just a quick post to let you know that Sam got out of the hospital yesterday at about 2pm and we had Halloween!   The nurses and I tried not to look to eager to the urologist lest she think we had any plans and we got sprung.   I love our nurses.  If you get a chance hug a […]