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Neil and Sam in Philly tonight

By Margot | November 17, 2009

Okay, so I’m sure you did a double take at that title after yesterday’s early morning post.  That’s what I get for lagging on the news.  Sam woke up yesterday much much better and went outside to visit with his brothers without his sunglasses.  He had a bit of a low grade fever in the morning but then was perfect all day yesterday.  We figured we’d better see about getting him on the plane today since MIBG injections are only done on Tuesdays at CHOP and otherwise we would have to reschedule the whole week.  The infectious diseases doc who we like a lot came by and gave us his blessing to go home on IV mirapenum and then Sheila, our savior nurse who helped us last time we needed to get out on a Sunday.  arranged for Dr. Madigan to get the paperwork going, home health care to deliver the antibiotics  and got us out by 4pm.  Unfortunately because of the Eagles game there were no flights to Philly on Southwest today from San Diego so we had to drive up to Orange County airport to get Sam and Neil on a 10am flight. Neil and I must have called each other a million times yesterday trying to arrange flights and times and home health and figuring how to take everything on the airplane.  Thank goodness for Maureen who watched the Charger game with Andy and Charlie yesterday.  Everything went smoothly this morning, there was no traffic and we go there in plenty of time.  It was tough to let them go this morning after the weekend we’d had but Charlie boy was with me and he made light of things yelling out a “Bye Sammy Dude  and Bye Dad” the whole time they waiting in the curbside check-in line.  Sam loved having him along to say good-bye.  He was back to his happy silly self yesterday and this morning.   I just had a sick feeling in my stomach driving away  from the airport but Neil said that the flight went well – just a little eye pain to Phoenix and then Sam slept most of the way to Philly and they are now safely there in the Doubletree Hotel. They were coming in too late for the Ronald McDonald House tonight.   Tomorrow is the CT, Wednesday is the MIBG and Thursday Neil will meet with doctor Maris.   Please think good thoughts for scans this week.

I’m going to try and drum up some fun for Andy and Charlie this week.  Andy is busy announcing to the world that he has made the All-Stars in soccer.  I think he told his whole class today.  He is so excited.  I am balancing celebrating him and knowing how hard it is on Sam.  I told him to go ahead and tell all the neighbors before Sam came home yesterday and he did just that.  Knocked on doors to let people know.  It was about the cutest thing.   Parent teacher conferences are this week.  They always seem to fall on a scan week so that I’m not actually too worked up about them in light of what else is going on during the week.  Vickie B.  please send some good scanxiety vibes ;-).

The good news is that the Chargers won yesterday so you can guess who will be wearing his LT Chargers jersey tomorrow when he sees his Philadelpia doctors.  🙂

Margot

Topics: Progress Reports | 8 Comments »

8 Responses to “Neil and Sam in Philly tonight”

  1. rhondadud Says:
    November 17th, 2009 at 1:56 am

    been waiting all day on an update…sooo glad he is feeling better and they got to philly with no problems….We will be flying to Vermont wednesday to scan so we’ll be thinking about you guys too!!!!! hoping for great news!!!!!!

    prayers!!

    rhonda

  2. Rebecca Says:
    November 17th, 2009 at 2:20 am

    Great news that you found a flight! I’ve been worried about you guys all day. Sending good scan vibes out and praying for the best! See you tomorrow.

  3. Abra McKean Says:
    November 17th, 2009 at 2:51 am

    SO SO SO happy to hear that Sam is doing better. You made my day. As always your ability to balance this crappy cancer stuff with everyday life with 3 little balls of energy amazes me. Praying extra hard this week and sending tons of good vibes.

    Luv
    Abra

  4. Vickie Buenger Says:
    November 17th, 2009 at 3:13 am

    Since I was a little late on comments to the last post, I think I’d better get my licks in early on this one. Let’s just put the old scanxiety to bed, and concentrate on great improvement in the eye department and a Charger victory. At least you have a couple of very recent head scans to help you along the path to a calm approach.

    Vickie

  5. Carrie Palmer Says:
    November 17th, 2009 at 3:43 pm

    Sending good thoughts and prayers your way for scans.

  6. Colleen Kuhn Says:
    November 17th, 2009 at 8:47 pm

    Keeping Sam in our prayers! Hope the flight went well !!!
    The weather is beautiful in Pittsburgh today, so I hope Philly has the same weather!!! This is very unusual mid- November weather.
    Thanks to Sam and Neil for bringing sunshine to our State !
    love, Colleen

  7. Lara Cady Weberling Says:
    November 17th, 2009 at 11:51 pm

    Right there with the pack – sending good vibes for scan days. Wishing you a super Office Visit. And…Go Andy!

    Hope they brought their swim suits! The Doubletree has a pretty sweet pool and Hot Tub.

    Lara

  8. Monica Says:
    November 18th, 2009 at 4:16 am

    So glad he’s feeling better & was able to make the flight!!! Here’s praying for good scans……