Archive for December, 2009

Short Stay (We Hope)

Monday, December 28th, 2009

Sam’s ANC caught up with him yesterday and he felt low all day. Then about 8pm he spiked a fever.  He so did not want to go in to the hospital.  He said, “please  don’t call.”   We have to call of course with 101.5 but we thought we’d go through the ER so we could […]

Merry Christmas to All

Friday, December 25th, 2009

Just a quick note to say Merry Christmas to everyone.   The boys had a ball and the carnage was considerable.  Sam got a surfboard and Andy got a snowboard and Charlie got a “mote control car and a mote control motorcycle” from Santa.  We are dog-sitting Roscoe the beagle who is barking hysterically at the “mote […]

Getting Ready for Santa

Friday, December 18th, 2009

I just got back from Sam’s school Christmas party.  He had a great time.  They played the greedy Santa game and he stole the new Diary of a Wimpy kid book and got to keep it which made him very happy.  It was great to watch him smile and laugh with his friends.  His pain […]


Wednesday, December 16th, 2009

We are in the hospital today doing a rituxan infusion.  Rituxan is normally used  for NB kids to get rid of HAMA with 3F8’s.  There is strong evidence though that it also gets rid of NB stem cells.  Neil can send info. if you are interested. Sam came in early with Neil for his blood check and then […]

Making Watermelon Punch

Friday, December 11th, 2009

First of all, thanks for all of the kind comments and offers of help.  Just being home has given us all an enormous emotional boost.  I’ve made some headway on Christmas (and work) in the past couple of days and am feeling much better.   Sam was set free on Tuesday afternoon and we all went to Andrew’s […]

Our Comeback Kid and Smashing Watermelons

Tuesday, December 8th, 2009

I know that I am sorely overdue an update.  Sam is still in the hospital but will be going home today. He’ll be on IV anti-biotics for a couple of more days and then oral anti-biotics. It took until about two days ago for his eye to start looking more normal.  Bright light bothered it and it hurt mightily […]

Orbital Cellulitis

Wednesday, December 2nd, 2009

Just a quick update to say that the head CT showed that Sam has orbital cellulitis.  Basically it’s a sinus infection in the eye that can be quite serious but should be knocked out with the antibiotics within 24 to 48 hours.  That’s a relief.  Don’t know how left arm and leg relate but will […]


Wednesday, December 2nd, 2009

We are inpatient tonight.  Sam had very bad head, leg and arm pain last night and a fever.  We gave him morphine at about 1am and he went back to sleep. Neil called in the fever and Dr. Roberts said he’d be ok to wait until morning given he was sleeping at the time we called and […]

Clean bone marrows!

Tuesday, December 1st, 2009

We got the official report back today from San Diego and aspirates and biopsy were clean. Yeah! We still have to reconcile the other read indicating heavy involvement but that will work it’s way out in a few days I’m sure. So official reads are stable MIBG, clean CT/MRI, clean marrows. What’s confounding this is […]