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HAPPY BOYS
By Margot | January 24, 2010
Sam came home yesterday afternoon.  Thank you nurse Sheila for working so hard to get us out of there.  The boys were so happy to see each other yesterday afternoon. Neil brought Andy and Charlie out to meet the car. Andy said earlier in the morning, “I’m going to be so happy to see Sam when he gets here I’m going to want to jump on him, but I won’t because he’s still in some pain.”  They were laughing and smiling at dinner last night and Andy and Charlie were bouncing off the walls. It was great to hear Sam laughing with his brothers and to see him smiling this morning. He had a good night last night with no break through pain, a little bit of neck pain before he went to bed. He’s hobbling around the house this morning and wants to go out to breakfast. His appetite has been awesome. While he was in the hospital, he sent me out in the pouring rain for babyback ribs, In and Out Burgers, French Toast, etc. and the great thing is he was actually eating it.   He got platelets on Friday night in anticipation of going home. He’s needing platelets about every three days. A transfusion gets him up to about eighty five and then by day three he needs another transfusion. His face is still a bit swollen and he’s had neck pain lately (may be neuropathy pain from the velcade so we put a warm pack on it (and or a bath) and that helps. His face is still pretty puffy and his belly is big. He is breathing a little harder though his oxygen levels are still 100%. It’s not noticeable really unless you look for it.  He seems to be taking a deep breath with every breath but he’s not struggling to breathe at all. He seems great this morning, and just having him home and out of the hospital bed is fantastic.  We are taking things one day at a time, or trying to at least.   He is on several lower toxicity drugs that work well on Sam’s cells in the lab (thank you Dr. Sholler and Erika) and we are lining up some new things for next week.Â
He did a lot of art in the playroom while we were in the hospital and he and I stopped on the way home at ToyRUs for some bakugans and more art supplies. Sam is a really patient and detailed artist. The playroom volunteers were really impressed with him.  I was thinking of asking Mrs. Meara, our art teacher, for some project ideas while he’s home. Charlie is here wanting to put the computer on “spell mode.” He likes to type his name over and over. He’s recognizing all of the letters now. He’s a little sponge these days. He likes to spell everything before he says it. He’s not usually close, he’ll say, “I want my MYOWQ basketball shoes on today.”Â
Please keep all of our NB friends in your thoughts and prayers, Erik Ludwinski, Jack Bartoz, Sydney Dudley, Melina Riniolo and Patrick Chance in particular this week/month.  Thank you to everyone for all of your help, listening, running errands, etc. Don’t know where we would be without the monster support of our friends and family.
Margot
Topics: Progress Reports | 18 Comments »
January 24th, 2010 at 5:34 pm
So glad Sam is at home and you are all together. Keeping all of you in our thoughts and prayers
January 24th, 2010 at 6:09 pm
Was very happy to read a little good news this morning. Sam is home!!! Praying that all the days ahead will be better than the one before it. Give my little buddy a big hug from me. I love you all. Angel Mary
January 24th, 2010 at 6:39 pm
Find it so hard not to tear up when you read of Warrior Sam…
When you think of the devastating effects of the C and the anti-C drugs battling each other…his shallow breathing…
Cant wait to see you Sam, my brother Redman, Margo and the boys.
Humbled.
Praying
January 24th, 2010 at 8:46 pm
So good to hear that Sam is back home laughing with his brothers. Sending lots of love and prayers from NY.
January 24th, 2010 at 9:32 pm
Family, home, brothers, laughing, comfort, peace, mom, dad, smiles… all good and all good medicine for SAM !
Prayers and happy thoughts sent to all of you !
Pouring rain here… Nick made a fire and he is happy to watch football with Claire Marie… while Andrew is at SAT classes…
thinking of all of you,
xo, Colleen
January 24th, 2010 at 11:18 pm
Soo so so Glad that Sam is home. I know you are a happy mommy with all your chicks under one roof. Saying many prayers that pain stays under controll. Hope to see you soon.
January 25th, 2010 at 12:27 am
So happy to know you all are together tonight! Amen!!
Love and prayers from Max’s cousins.
January 25th, 2010 at 3:34 am
Who hoo! Glad for all of you! Angela (Madison’s Mom)
January 25th, 2010 at 4:41 am
I am sooooo happy that Sam is home. I pray that everyone has a good nights rest in their own comfy beds.
January 25th, 2010 at 7:57 am
there’s no place like home. Jan
January 25th, 2010 at 12:32 pm
Dear Margs,Neil,Sam,Andy&Charlie, So very glad Sam is home and everyone is together, even the extended family! Everyone is so happy to read Sam is out of the hospital! I even have friends walking up to me in the park rejoicing about Sam being home! Keep blogging Marg, You have the love and support of the whole nation and the world! Think I,ve seen from Australia to Sweden just recently on your comments! Everyone is pulling and praying for Sam! He truly is an amazing little boy! such strength and tenacity! He certainly has inherited from both parents the spirit of the “Fighting Irish!” Enjoy each day; and I hope you & Neil can get some sleep with everyone at home together!
Lots of Love, Mom, “Grandma Sara”
January 25th, 2010 at 4:25 pm
I’m so happy he is home and with his brothers, been waiting for this post 🙂
January 25th, 2010 at 5:00 pm
I am SO SO happy for you five!!!! So, when can we meet? I am VERY serious about the offer of photos. hugs to your precious boys, Shawn
January 25th, 2010 at 10:25 pm
Hey Guys,
Been thinking of you all every day this past week. Be strong, enjoy the laughter, live life, share your love for one another.
January 26th, 2010 at 4:18 am
I am so glad you have Sam home and all your boys together enjoying each other. I admire you Margot and Neil you are a lovely family.
January 27th, 2010 at 12:31 am
Thinking of you guys. So cool to hear about Sam’s artwork. May the low-dose do it’s magic..
January 29th, 2010 at 1:38 pm
Thinking of Sam this morning and how amazed he would have been at the rain we had last night. When I walked this morning, the lake had taken over the trail where I walk (mid calf on my wellies), and I had to pick Teddy up and carry her part of the way so she didn’t have to swim. I’m thinking that would be pretty stunning to a San Diego boy.
February 2nd, 2010 at 2:57 pm
Stopped by today to see how things were going at Chez Hutchison. I think of you all fondly every day.
Vickie