Archive for February, 2010

Doing ok!

Sunday, February 28th, 2010

Quick update and we apologize for the lack of information. Sam completed radiation to the liver Wed and to the skull on Friday. Liver numbers are dropping. For the other NB parents, AST/ALT, Bili are basically normal – GGT is down by half but still elevated. It’s a good tumor marker so we hope to […]

Project Management

Saturday, February 20th, 2010

Sam came home yesterday afternoon and as usual all of our moods brightened quite a bit.  He is on a pain pump and fluids.  It was kind of funny because he wanted to make what is becoming our traditional Toys R Us stop on the way home from the hospital and I was trying to […]

Yesterday Sucked but today is better

Thursday, February 18th, 2010

We are working on getting Sam discharged.  He spent a couple of days in the ICU because his sodium levels were dropping and the only place to get highly salienated fluids is in the ICU.  It made us really appreciate the Hem/Onc ward though we did have one rock star nurse who was great. Not our Sheila The […]

Globetrotters and Valentines

Sunday, February 14th, 2010

Sam almost made it to his Valentine’s Day party on Thursday but started feeling pretty cruddy about an hour before we were going to go.  He wrote out all of his Valentine’s the night before.  He loves to do that.  I dropped them off to his class and picked up a huge bag stuffed for him and Ms. […]


Wednesday, February 10th, 2010

The title of today’s post has two meanings.  Erik Ludwinski passed away last night.  His mother Donna has been our friend and support since we started this journey and Erik has been an inspiration and an example to nearly every NB family.  Sam and I were able to have dinner ( a 10pm dinner)  with […]

Home Again Home Again Jiggety Jog

Wednesday, February 3rd, 2010

Just a quick update to say that Sam walked (albeit slowly) out of the hospital this afternoon after they discharged us.  His fever and neuropathic pain has resolved for the most part and we are all now home again together.  I feel a little bit like we’ve been on a yo yo hospital stay lately […]

OK and BMX and much later ER

Tuesday, February 2nd, 2010

Charlie will proudly tell you that he can spell both OK and BMX.  Sam had a pretty good week last week.  He didn’t have any break through pain that was not controllable and slept through the nights and was generally up and around.  He’s on 20mg oxycontin twice a day.  He got platelets on Tuesday (11)  and […]