teamsam.com Blog

Kindness That Keeps us Afloat

By Margot | March 10, 2008

smt.jpg 

Sam and Max with Tony Hawk

samandjoe.jpg 

 Sam and Joe

Little Joe Monaco (Sam’s best friend) to his mother last week:  “Mom, I don’t want to give up my dream of being an airline pilot but I think I’m going to be a scientist and cure cancer.”  Colleen told him that he can buy his own plane if he cures cancer. Later in the car…  “Is anybody even working on it?”  “Yes,” says, Colleen, “People are working on it.”   “That’s good because I think I’m going to need some clues.”  Pause  “Are there any clues?”I love that.  Little Joe is such an awesome friend to Sam.
My friend Miranda and her husband Bill are having a first birthday party for the adorable little Jack.  She sent out an evite invitation yesterday that stated “Jackie has a lot of stuff, but if you want to donate in his name see http://www.magicwater.org/.  Check out the site and meet our 7 year-old friend Sam who’s fighting the evil neuroblastoma.  Sammy’s a real superhero!”  Thanks Miranda and Bill for such a kind gesture.
This past weekend Max Mikulak’s teacher, Mrs Sturt and her husband, Daniel Sturt who is the official photographer for Skate Magazine got our families VIP passes to the skate demo The Clash at Clairmont.  The boys got to watch the demo up close and then got to actually go up on the ramp to watch the skaters.  Tony Hawk stopped and talked to Max and Sam and took pictures with them.  Thanks Tony for taking the time.  Andy got a high five from him as we left which made his day.  Thank you to the Mikulaks and the Sturts and Tony Hawk and all of the skaters who were so nice to us.
I’d like to thank our PeeWee basketball team parents who chipped in and gave me a gift certicate to go out to dinner and a donation to MagicWater for coaching.   I was very touched.  I had a lot of fun coaching such a great group of kids.

Sam has a tough week this week in terms of hospital visits.  Tomorrow is the MRI which he’ll be awake for because of the last disaster we had and then Wednesday is a bone marrow biopsy (Ugh) which will be sent to Dr. Sholler to see if she can grow Sam’s cells and send them to Dr. Brown at MD. Andersen who is doing morphoproteomics for Dr. Sholler so that we can see what might be most effective for different kids (You can see more about it on the MagicWater website).  We are of course hoping that nothing will grow -meaning bone marrow is indeed clear but we want to have our ducks in a row (in case we need them to be in a row).

Next week is Sam’s and Andy’s spring break so we are hitting the road for Arizona and Padres Spring training for a long weekend.  Then Grandpa is coming to visit and we have an MIBG scan when we get back.   We took last Wednesday off from the hospital so I don’t have any blood numbers to report.  I’ll report again on Wednesday when I’ll have a CBC and chemistry with LDH.  I won’t have another VMA/HVA number until early next week.  Somehow we seem to always do scans on spring break.  Ick.  But Arizona will be fun.  We’re hoping bones are healing now that copper levels should be back up and we can get Sam’s casts off later this month.

Charlie and Andy pictures next.  Doug Sahlin, our website guru, has guided me through getting the pictures up today on our new website (I even resized them with his help) so I should be flooding you with kid pics shortly. Doug also worked early this week on getting all of the archives up for us which is great.  Thank you Doug.  Thanks a million to everyone who helps keep us going.  We are just flat-out floored by people’s kindness. Happy Spring!

Margot  

 

Topics: Progress Reports | 1 Comment »

Copper

By Margot | March 3, 2008

We have an MRI scheduled on March 11th and an MIBG on March 20th.  HVA today was 19 (Cripes!) and VMA was 5.  The consensus on Sam’s growth plates is that his copper levels are too low, correlated by the fact that, well, his copper levels are too low.  His cirruloplasm today was ten which is very low.  We need to back off on the tetrathiomolybdate and start to get his copper levels up.  The only comfort that I am taking in the very high HVA is that I found an article on Google that stated that low copper levels can cause high HVA.  Do I know that is what is happening? No.  I do not but the fact that the VMA (although it did rise a little) and LDH are not rising with the HVA is a good sign I think. (I hope I hope) The scans will be crucial of course.  Aren’t they always?

In the meantime, Sam is adjusting to his casts as well as possible. I just picked him up from school and he had a smile on his face when I got there.  They had a sub and I asked how it went and he said, “Yeah, she was nice but she didn’t really know what she was doing.”  Sam thinks Mrs. Gage walks on water.  He just adores her so I’m guessing most subs are poor substitues (pun intended).  He shot a foul shot in Friday night’s game and made it. We put him in for the last play of the game and he got a shot up before the buzzer that just rimmed out.  He is glad that basketball season is over because now “it is fair” and he doesn’t have to watch everyone else play.  He got a new cast on his right leg because the blue one was hurting and the tech let him get a blue and green cast.  He said he doesn’t mix colors for most kids but he did it for Sam.  Sam always wants the swirl whether it’s ice-cream or “mixed up cheese” (Colby Jack), he’s a combo kind of guy.  He asks just about every day when he can get his casts off so I’m really hoping we see some improvement on the MRI and he can be cast free for swimming season.   He’s been playing board games at recess with a group of boys, Tanner and Joe are always in the group and have been so loyal and kind.  All of the kids have been really nice to him. 

We took the boys and Mimi to Legoland on Saturday and they rode all of their favorite rollercoasters, drove the cars, and went with Charlie on his fist little guy rides.  He liked the helicopter and the safari ride, not so much the pirate ship.  I haven’t written much about him of late but he is starting to talk up a storm and is quite a happy, funny little guy. He is a verb guy “run!” “jump!” “throw!” “Um! (Let’s eat)” He brings so much joy to all of us, and is the best medicine for cheering up Sammy.  He loves to dance and run after his brothers and play tickle games.  Andrew constantly torments him but conversely, is extremely protective of him and loves to play with him.  Andrew is doing well too.  He’s his usual social self and is putting it all together with spelling and addition and comes up with answers and questions that constantly amaze us.

I am squashing that ugly, sicky pit of the stomach feeling I have.  Neil had just called me with the VMA/HVA and I am going to think copper copper copper unless I am proven wrong.  Thanks to everyone for their kind comments and emails.  We really appreciate them.  Here’s to Spring and a good scan month.

 Margot 

   

Topics: Progress Reports | 2 Comments »

Winning Who is Worse Off

By Margot | February 26, 2008

We went to Dr. Chambers today.  He was sick on Friday so we postponed until today.  Sam’s other ankle is broken and they put a cast on it today.  He picked blue just like his hearing aids -he has one blue and one red cast.   He was hoping he might get his red cast off today and instead they put one on his other ankle. I didn’t think I could stand it as I held him as he cried and they put the other cast on.  I just hate this, I hate it. I hate it.  I want to kick something, I want to run until I drop.   Dr. Chambers  really wants him to take it easy and even suggested a wheel chair which we said no to.  His growth plates are stressed and his bones along the growth plate in the ankles and the knees both look as if he has rickets but he doesn’t. His Vitamin D levels are normal so Dr. Chambers isn’t sure what is going on.  We are doing an MRI and going to see an endocrinoligist so that we can figure it out. Dr. Chambers was very reassuring that we will figure it out and can correct it. Sam shouldn’t have played basketball on Friday. He made a basket at the buzzer before half-time and he’s still talking about it.  Neil got it on video, it was pretty amazing. He was only walking obviously with a cast on but he’s going to have to really take it easy now and basketball is out.  Luckily we only have one game left.  As we sat outside the hospital and waited for Neil, who was getting the car, we were both crying and he looked at me and said “Are you crying too?”   “Why are you crying?”  I said “Because you had to get another cast.”   He smiled and cheered up some. Neil and I are somewhat dazed. If we are the proverbial camel, we are staggering under the weight of the straw tonight.

This part at least isn’t cancer which is good but it still hurts for Sam who lives for recess and basketball and everything active.  He and I talked about it tonight and I’m going to bring every board game we have to school so he can play them at recess.  He seemed to like that idea and we started to plan which games we’d bring.  He is very good at checkers so we picked that and Battleship and Sorry and Clue Jr.  I know the kids will be happy to play games with him and Mrs. Gage and the principal have been really great about offering to help.   He had to stay home again today because his stomach has been a mess. The diarrhea bug came back yesterday and I figured I’d better keep him home again today.  He was ok today though.    Andrew got barked at tonight before bed.  He kept asking me for fruit gushers (total junk that probably shouldn’t even be in the house) and I kept telling him “no.”  Andrew and fruit gushers at 8:30pm is not a good mix – think bouncing off the walls.  I’d told him he could have something healthy like an apple and he would not let it go -tensions running slightly high in the household Neil and I lost our patience.  When I came back upstairs with the apple Andrew was lying on the floor feeling sorry for himself and as I came up the stairs I heard him say, “I got yelled at, Sam.”  Sam replied, “Well, I had something worse.”  “What?” Andrew asked. “I had two casts on my legs, I’ve had diarrhea for two days and you just scratched me.”  “Oh,” says Andrew  And then they looked at each other and laughed.  

So take that, neuroblastoma!  Stick that in your stupid body ravaging pipe and smoke it!  Because you will never beat Sam’s spirit or his sense of humor.  You will never beat it.

Margot

Topics: Progress Reports | 4 Comments »

VMA/HVA

By Margot | February 19, 2008

Our VMA last week was 3.  Nicely down and very normal.  HVA was 14.5 just down .5 from last week and still high.  Don’t know what to think.

 Margot

 

Topics: Progress Reports | 1 Comment »

By Margot | February 19, 2008

I haven’t felt much like updating lately.  I still don’t have the VMA/HVA numbers from last week but have a call in to Jayne today and should have them back shortly.  We went in to the orthopedic specialist on Friday afternoon to have them look at Sam’s ankles again as he was still limply a lot after running.  Dr. Chambers was out with the flu but there was a great physician’s assistant and back up doctor there.  They took a look at Sam’s left ankle which was slightly swollen and wanted to do another x-ray.  We did the x-ray right there in the office and though the right ankle looked clean, the left one did not.  The middle bone between the foot and the tibia was all pushed over to one side and there was an outer little bump on the ankle that was not there in October.  The doctor thinks it all may be caused by a small fracture that we can’t see but wasn’t sure and wanted to wait until Dr. Chambers got back and took a look at it before ordering an MRI.  In the meantime, he put a cast on Sam’s left leg because he didn’t want him to move it at all, he was pretty concerned about the way it looked.  Poor Sam cried because he was going to have to miss the basketball game that afternoon and kept saying the whole time they put the cast on his leg, “But Mom, it doesn’t hurt, I can play, I can play.”  The whole family was there and Andy was doing his best to make Sam laugh by bonking himself in the head so Charlie got into the act and they finally got a smile out of him. I told him he could help me coach basketball if he still wanted to go and Neil stopped at home to pick up some sharpies and the whole team signed his cast on the sidelines. He picked a red cast and kept saying he didn’t want to go to school with it on.  I think he’s still a bit worried about going to school but as fate or luck or whatever would have it, he came down with a stomach bug last night and is home today. He seems to be feeling fine now but was up most of the night.  He has rallied tremendously as he always does and has discovered how fast he can spin around on the kitchen floor on the heel of his cast. Since both ankles were hurting, there is either something else going on in the other ankle or the same thing.  They are hurting in the exact same spots.

Since we didn’t go anywhere for President’s Day weekend we had a little vacation in San Diego.  We went to the USD basketball game on Saturday night which was really fun for the boys and then went to Balboa Park on Sunday and took Charlie on the little train which he loved and the carousel (which he did not love) and ran around the museums and had a picnic out on the grass.  Yesterday, since Neil was working the boys and I went to Corondo and I rented a surrey bike, popped Charlie in the front and Andy and Sam next to me and pedalled around the island.  It was quite a workout for mom but the boys loved it and cheered me on up all the hills, I have to say that the way home with the wind at our back was much easier.

As much as I want to scream and wallow that it’s not fair that Sam has to walk in a cast and be the slowest in school, that he most likely has been playing basketball for an entire season with a broken or at least really screwed up ankle, that he has put up with and puts up with so much on a daily basis, I will not.  I will look at our glass half-full and say, “Sam is playing basketball and having fun, Sam is keeping up with his class, Sam is still our funny, sweet fighter who woke up on Valentine’s Day so excited to give Neil and I the valentine he made for us.  We are lucky to have our funny, rambunctious boys. My brother-in-law Matt reminded me of that last night after he talked to Andrew on the phone and Andrew casually said, “So, what you up to?”     Sam’s up and ready to help me coach basketball today. He told me yesterday in the car when I was teasing Charlie, “Mom, you almost made me laugh my head off again.”    

We have lost three more children this week: The beautiful Eden Brunskow died last night.  She was a wonderful little girl full of spirit.  Neil is going up to Michael Haley’s funeral this afternoon.  His parents and family went to Legoland this past weekend, his favorite place on earth, to honor him. Harrison Nichols died two days ago: http://www.caringbridge.org/nc/harrison/  Harrison defied the odds many times.

Austin Melgar has bone marrow packed with disease but is still fighting and in good spirits.  I so hope that the new treatments his parents are starting do something to stop the progression of disease.    Please think good thoughts and say some prayers for all of these families.

Margot 

 

Topics: Progress Reports | Comments Off on

Quick update to last post

By Margot | February 13, 2008

Dr. Sholler said the white count numbers are probably because Sam has a virus and that all the numbers together look good.  Off to do something fun with the boys this afternoon just to keep the contrast going.

Margot 

Topics: Progress Reports | 1 Comment »

Confusing Numbers

By Margot | February 13, 2008

We finally got last weeks VMA/HVA back.  The VMA was exactly the same, 4.4 but the HVA was very high, 15.  It hasn’t been that high since we initially relapsed but at that time  the VMA rose with it.  VMA is less dependant on diet so most doctors put more weight on the VMA number.  We did another blood check today and LDH was 598 (smack dab in the middle of normal which is good) but Sam’s white count was low which is weird.  We started adding another nifurtimox because Sam is growing in weight and height and that may be the reason ANC is low.  Today’s urine test (which I hope we get back by Friday) will tell a lot. If the high HVA was a fluke,  it’ll be back down, if it wasn’t we will probably start to explore some options.  Our next scan is scheduled for March 27th but we are trying to get it moved up.  It was supposed to be in February but Nuc Med is very busy.  Jayne said she would move it up.  The array of strange numbers we have had lately is enough to give me that constant sick feeling in my stomach but there are also numbers, still low VMA and LDH which allow me to rationalize the meaning of the other numbers. We will not flat out panic until we see a definite trend.  Our high veg F came back down.  We really need a scan.

The boys are doing well. Sam and Andy are still loving basketball.  We got stomped again last week but Sam scored which was great and Little Joe had the great quote that “we would have won if we’d had Luke there.”  Such an optimist.  Luke was on vacation.  We’ve had wonderful weather here in the high 70’s and Neil and I took the boys to the beach the other night at sunset and low tide.  It was awesome to watch them running along the wide beach and having so much fun, we walked to the pier and it was a perfect night.  Neil and I are still talking about it and how we need to do it more often.  It strange to live a life of such contrasts.  The highs so high and the lows so low.

Michael Haley died last night.  He does not have a website but please say some prayers and think good thoughts for his family during this tough time.  He was about six months younger than Sam.

 Margot

 

 

Topics: Progress Reports | Comments Off on Confusing Numbers

Hope in a Fortune Cookie

By Margot | February 8, 2008

I’m woefully behind this week at just about everything, work, school stuff,  and of course, posting on the website.  Sorry for the long delay.  The only numbers of import that I have to share this week are LDH: 630 (normal) and IL6 - 33 Normal is below 3.1. It’s way above normal.  The IL6 number was taken back on the day before Sam got his braces.  It’s an inflammatory number as well so I hope like the VegF number, it will go back down again.  It’s a pretty good cancer marker but is not usually a marker for bone disease.  It has to do with tissue somehow, so that is comforting unless we are beginning to get soft tissue disease.  All the speculation will end with the upcoming scan -still no date on that yet but it is being scheduled.

Sam is doing well.  I volunteered in his class for an hour yesterday and they celebrated the Chinese New Year.  Mrs. Gage brought in sticky rice and all of the kids learned how to use chopsticks and they learned the Chinese zodiac. Sam is a dragon which he thinks is really cool. He wanted me to stay for lunch and though I needed to get back to work, I did and I was so glad I did.  He and I had a great time together eating lunch and  I watched him play the hand ball game that the boys play at lunch. 

We had Chinese food last night for Chinese New Year’s and Sam’s fortune cookie said “You will live a long life.”  There it is, in a silly mass produced fortune cookie, but I clung to it anyway.  Sam said, “So mom, when I’m really old, I’ll live a long time, like your grandmother Owie.  I’ll live till I’m 103.” 

We have a basketball game tonight at 5:30.  We lost by a large margin again last week but Matthew made a last second shot (our only basket of the game) and the whole place erupted so the kids went home happy and I think some of them thought we won.  We play a very tall team today and we’ve scrimmaged them in practice a couple of times.  Sam said today, “Mom, I’m ready.  Can I guard the same guy I guarded at practice, the really good shooter?”  I’m ready to win.”   He’s so awesome.

I went with Andy on a field trip this week.  His preschool went to an International Refugee Center in City Heights, San Diego to play with the kids.  They’ve been writing letters to them for the past couple of months.  They are kids from Somalia, Sudan, Ethiopia and  many other war torn countries.  I have just finished reading What is the What?  by Dave Eggers, a fantastic book for those of you who can’t sleep at night. It is a narrative by one of The Lost Boys of Sudan and the story is amazing.  It will however give you something else to worry about.  I had grand illusions of the field trip being a life changing experience for Andy but he pretty much hung with his buddies and had a great time but didn’t interact a whole lot. (I know, realistic expectations would be nice, mom).  He loved the bus ride. ;-).  He’s very ready for kindergarten and asks me practically every day when he’s going to get to go.

Charlie is doing well.  He is talking more and more.  He says “No”  all the time now but he says it so nicely, “nooo.”  It’s never a mad no. 

Please say some prayers and think good thoughts for our friend Michael Haley.  He has been in this fight as long as we have and Larry and Neil are very good friends. He is from Orange County and is not doing well. He has an infection that is very serious.  Sam has played with him and his brothers and he’s a wonderful kid.

That’s all for my update today.  More soon and once I catch up on things, I’ll post pictures.

 Margot

 

 

Topics: Progress Reports | Comments Off on Hope in a Fortune Cookie

Andy is 5

By Margot | January 31, 2008

Andy had a full four days of  birthday celebration.  We had a big party at Pump it Up! on Saturday (same place we had Sam’s -  I swear in my next life I’m going to open a Pump it Up! The place is a goldmine). The kids had a great time and Andy was in his element. Maureen came and took Andy to Toys R Us on Sunday to pick something out and Elizabeth is taking him to today. His haul on loot was fairly ridiculous.  All the boys love the basketball hoop on the back of the closet door and have been shooting hoops in house for five days.  On his actual birthday Andy woke up and said “Am I full five now?”  Then he went around telling everyone, he was a full five.  We brought brownies to basketball practice and then had an ice-cream cake at home after dinner and he got to open his presents from Mom and Dad and Grandma Joan and Nicole.  He has been asking for a Patriots Jersey.  He is a huge Patriots fan (because they are the best) and so when he was opening our present, he said, “Oh please let it be a Patriots Jersey, please let it be a Patriots Jersey.”  He was so proud walking around yesterday in his number 12 Tom Brady Patriots Jersey.  Tom Brady should be happy to know that after literally years of me trying to get Andy to use a napkin instead of his sleeve, last night after Kumon we went to Soup Plantation (I do actually cook, by the way, but Soup Plantation is easy after Kumon (our tutoring place) and some b-ball practice nights) with Grandma Sara and Andy said to me while he was eating, “Mom, do you know why I’m trying not to get my Patriots jersey dirty?  Because it is special.”  Then he actually picked up a napkin and used it on his mouth.”  Amazing!

He started sleeping in the top bunk while Neil was in New York- quite a milestone.  When we got the bunk beds he and Sam fought like crazy over who was going to get to sleep on top and then they both chickened out and shared the double bed on the bottom.  Andy has decided since he’s five now, he’s sleeping on the top bunk.

Sam’s ankles are getting incrementally better.  It is not a night and day difference but each day seems to get a little better so that’s good.  We have the week off from the hospital since we did and an extra blood check last week so I don’t have any numbers news.  Sam seems to be feeling fine and in good spirits so this week I’m going to take the ignorance is bliss theory for a week and enjoy it.  I had an IEP meeting at his school and we are trying to get him an aid in class.  It is mountains of paperwork and a lot of meetings but I think we’ve finally got it so that the aid will start in February   I was talking to his audioligist yesterday and she said that I should start pre-teaching him so that he’s familiar with the new vocabulary before the teacher teaches it.  Chemo hearing loss leaves the hearer not only with less hearing ability but also with less discrimination.  So the hearing that is left is not great.  If Sam’s teacher is teaching about Martin Luther King and civil rights. Sam is probably hearing Marbin Lutor King and Drivel rights.  Even with his hearing aids and a quiet environment he tests at 60% “discrim.” If I’ve taught him about the lesson before, he’s not going to be as lost, if not, the new vocab is going to throw him for a loop. I wish I’d known or thought of this two years ago but at least I can start preteaching now.  Given what he’s up against, Sam continues to amaze me. He’s keeping up with his class and really enjoying learning.  He has a great teacher and wonderful support at school.

We won our basketball game last Friday night.  We’re not supposed to be keeping score but somehow all the kids know the score anyway. I have to post this because we have another game tomorrow night and if we get creamed, I should have it on record that all kids played great last week and we won.  Sammy scored as did Joe and Luke and Matthew.  Sam looked much more comfortable running in the game.  Andy was a great defender. The win was all coaching I tell you ;-).  We have practice today and another game tomorrow night.

Neil said the MagicWater meeting in New York was really good and that the presentations were excellent.  He came home with a lot of hope for research and many plans as per usual for him. I went to a fundraising training called For Impact on Monday and Tuesday.  My good friend Meredith helped set me up with it (Thanks Meredith) and it was great.  I’m all geared up to raise millions for Magic Water.  Time is an issue of course but this was a “bag the elephant” type training so I just need to find some elephants.  There were a lot of people there raising money for schools or programs to get kids off drugs and we had to have practice meetings with “potential donors” and in one of my practice meetings, after I finished, the woman said, “Wow, I want to jump off my bandwagon and on to yours.  You can have all my money.”  and the other woman said, “You had me at hello. How much do you need?”  So now to implement it in a real life scenario…

I was thinking about the wonderful Dr. Sholler yesterday and how much she has done for our kids.   I lived in Barcelona, Spain my junior year in college. I loved it - the people, the food, the culture. However, I was often frustrated because the mentality (as least when I was there) of a lot of the people was not exactly outside-of-the-box thinking.  I would decide to walk somewhere on a Saturday and would often get lost, I’d get to a little shop and ask for directions to wherever I was going and the shopkeeper would say to me, “Andando? (walking) Es imposible (it’s imposible).  I would try to explain that I knew it was a long way but I had all day and wanted to walk and they would shake their head again and say “Es imposible.” And that would be it for the information I was going to get out of them.   That’s just one example but I’d get at the bank or the university or wherever.  By the end of the year, I stopped trying to fight it.  Anyway, before we found Dr. Sholler we got a lot of “Es imposible” and now I feel like someone is pointing the way and saying “Maybe you can try this street or that one.” And we so appreciate it and her and all that she does. 

Sorry for the long post.  I forgot to crop it again.  Doug keeps telling me I can crop it in our new blog but I keep forgetting.  Next up, I’ll upload pictures and if I can figure out video on here I’ll try some of that soon.  We’ve got some great crazy jumping video of Charlie to post.  By the way, he is a maniac.  He was sitting on our kitchen counter as I was cutting fruit for Andy’s birthday party and I had that vague motherly feeling that it was probably not a good idea for him to be up there but I kept my hand on his leg for most of the time.  I turned around quickly for something and he leaned forward and fell off.  I thought he’d broken his leg or arm but he popped up with a big grin and said. I’m Juuuump!  Woah!

Margot 

 

Topics: Progress Reports | Comments Off on Andy is 5

Ankle Update

By Margot | January 25, 2008

Sam is already walking better with the new braces.  He’s only had them for 3/4 of a day.  I swear I’m not imagining it.  Stupid, stupid mother for not doing this sooner.  Argh.  I am so mad at myself.  The wonderful sports medicine doctor we saw today, Dr. Martinez was great.  He did a full work up on Sam and confirmed that it is probably the tendons.   He gave us some good fun stregnthing tricks and said if the braces are helping, Sam should stay active.  We’ll see how he does tomorrow in school.

Sam’s LDH from this morning was 578 -lower than last week – a very good thing.  His D-dimer was 1240 (normal is less than 400), last reading on January 3rd was 582.  So something is definitely going on with Sam’s inflammatory system (hopefully not his cancer).  We are heartened by the LDH and if we can get his ankles taken care of, maybe we’ll see those numbers go down.  Scans are next month.

More soon after Andy’s birthday party.  He is bursting (of course he usually bursting about something) but he’s really bursting about his birthday. 

Margot

Topics: Progress Reports | 2 Comments »

« Previous Entries Next Entries »