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August 3, 2005

By Laurel | August 3, 2005

There’s a beautiful little girl at Children’s San Diego who needs some prayers. Her name is Kelsey. She’s 5, a beautiful little blond bundle of energy, and is an incredibly strong fighter. She’s battling leukemia for the second time and needs her immune system to respond. Please pray that her WBC’s kick in. Her mom hears her daughter praying for her WBC to kick in when Kelsey talks in her sleep. She’s an amazing little girl with an immense desire to get better and could use a huge hand. So please spread some good karma Kelsey’s way.
Team Sam is now firmly ensconced in Arcadia now. It’s really a beautiful town with great parks, the Santa Anita racetrack (the horses are at Del Mar for the summer), the LA Arboretum, and a very pleasant downtown. Margot & I trade off nights in the hospital. It’s a good mix: Mom makes him practice words, numbers, and letters. I’m bigger on the Nintendo/Gamecube practice. Andy misses his house in San Diego, Elizabeth, & Maureen. We may drive back for a day or two to give him a fix of his Bob the Builder bed.
What else? I have not heard from 2 of my friends, Nellie & Versonic. I think they may be totally embarrassed post-Rafael Palmeiro and the steroid bust. They may have even moved out of California. Certainly they’re in some type of witness protection plan to have disappeared so completely. We have had a decade-long disagreement on Raffy vs. Will Clark. Will the Thrill was an amazing player who didn’t put up Raffy’s numbers but then again, played clean. If they read this, it’s ok. The beers I had bought you to settle the bet are now owed back to me and I aim to collect!
Sam still has an appetite. His head is bald, eyebrows & eyelashes are gone, and he’s sterile. Yup. Margot signed the consent form acknowledging that risk last week. It sucks but that’s just the cost of beating this. He will probably need radiation to both legs so that may stunt his growth. Once again, it really sucks but we’re happy to have this trade-off and we’re not complaining. I guess I think about how I explain this to him down the road. And I hope he stays confident about himself because it’s not the physical stuff that makes you special; it’s what’s inside. I think as adults we all know that. I hope I have the wisdom to explain it to him and help him understand and stay positive and he understands our decisions as a teen. He doesn’t have mucositis yet but we know that’s coming. Stem cells get infused Friday and he should go neutropenic Sunday. So, he’s doing great, the worst is still to come, but we’re ready for it and will make it as fun as possible because life awaits us on the other side. Thanks for reading.
Neil

Topics: Progress Reports | Comments Off on August 3, 2005

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